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Blind and Visually Impaired Community

Full History - 2021 - 12 - 27 - ID#rpxj96
16
Constant and continuing vision loss (self.Blind)
submitted by goldstone3
I was born extremely premature because I was a sextuplet(six at once) weighting 1.02lbs. We stayed in the NICU for months after our birth and I was on oxygen throughout and needed a surgery to cut the veins in my eyes because they were becoming to tight on my eyeballs. I got my first pair of glasses in 1st grade but could have gotten them sooner. Since then I have had to get a new prescription every year. When I was 18 my doctor said that the vision loss should start to level out, as in I shouldn’t need a new prescription every year. Now, at 24 Im still continuing to lose vision. Im up to a -8.00 in one eye and a -6.5 in the other with a stigmatism in both eyes and constant floaters. My eyes are incredibly sensitive to light and I have poor night vision. I also have bad depth perception and because of that do not drive if I can help it. My question is does anyone have an idea if I will eventually go blind-where my vision can no longer be corrected? Any help or ideas would be so appreciated internet friends.
carolineecouture 10 points 1y ago
Friend, I don't know anything about your situation. I wanted to say I join with you and having vision problems since birth. I was born with congenital Glaucoma and had my first surgery at three days old. I don't know what will happen with my eyes either. If you can I'd ask your doctor about a second opinion and bring up your concerns. My docs have always been open to my concerns. Good luck!
pictouguy 3 points 1y ago
The first thing I would do is serk out an eye specialist.
KnittingTeaDrinker 2 points 1y ago
I know what it’s like to be worried about the vision loss. I’ve worn thick glasses since I was 3. I currently wear -12 contacts with glasses over them for additional correction and to help the astigmatism and still barely see enough to get by. I should be wearing -14 contacts, but my insurance will only cover up to -12. I’m in my late 40s, so I have presbyopia too. I recently got floaters and also have sensitive eyes and headaches from it and have lattice degeneration, so I’m being monitored by a retina specialist. Definitely ask your eye doctor about your vision loss and what the long term looks like for you. I have asked and mine says that I shouldn’t worry about the prescription getting so high that I will go blind. Certainly there are other factors that can cause that and everyone’s case is different. I was referred to the blind center in my area because he wanted me to see a specialist there and possibly get some tools to help my vision loss, but I’ve had the worst luck with the people that work the applications and have had no follow up. You can talk to your doctor to ask if that would be a good resource for you.
shiranzm 1 points 1y ago
57F here, I have -11.5 in one eye and -9 in the other. I have lattice degeneration and am at high risk for glaucoma. My vision has been stable for about 10 years though. Your optometrist or ophthalmologist can probably let you know what your risk is. Mine warns me every year about possible retina tear/ detachment.
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