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Blind and Visually Impaired Community

Full History - 2021 - 12 - 30 - ID#rsb9so
24
My friend has a rapid vision loss disease of sorts and it’s causing him extreme depression. I have some questions. (self.Blind)
submitted by [deleted]
I think he’s probably around 10-15% of his original vision now. When I first met him years ago it seemed to be about 80%. The guy is constantly depressed, drinking and partying, and I really would like him to get out of that lifestyle as his friend. He lives a few hours from me so I can’t visit him that often but I want to help how I can. If you can offer me some insight into living with, coping with, and maintaining fulfillment in life with vision loss or blindness I’d really appreciate it. Also, sorry if this comes off a bit ignorant, I don’t know many people with this type of issue.

Thank you for your time.

From a concerned friend.
xmachinaxxx 13 points 1y ago
You can gently suggest other things to him but ultimately he is the only one who can stop the partying and find fulfillment in his life. I do want to say though that you sound like a great friend, one that anyone would be lucky to have.
poe9 1 points 1y ago
Thank you. I’ve tried to say what I can to suggest that his lifestyle is exacerbating his depression and that he’s only getting temporary relief. He usually says I’m being an asshole and to stop judging him. He’s got some tough walls up and although we consider each other brothers I’m at a point now where I can’t really be around him or associate with him. He’s the only one that can get himself to change his path and he doesn’t want to do that, but I can’t put the weight of that on myself any longer.

Thank you for your kindness, have a wonderful day.
TechnicalPragmatist 2 points 1y ago
Yeah, I know a person just like this except he doesn’t drink anymore but tries to grab attention and is very jock like grab attention. Really unhealthy too. When I suggest anything even gently I get the same response. He’s done some stuff to me so now he’s kinda a former friend.

Just to say I know how it is and sorry you have a friend like this. Honestly there’s not much you can do unless and until he wants to change, learn, grow up, and adjust and adapt there isn’t much for him. Certainly he can get out of depression by adjusting, adapting and learning blindness skills but he has to want it.

I find people who keep saying you’re judging me type comments are really insecure, unhealthy, and stuff of that nature.
JMP09151_ 10 points 1y ago
As someone who’s been in the same shoes as your friend you have to let him run with his emotions when he burns out and accepts how things are the best thing you could do is just be there for your friend!! Everyone deals with grief differently !
likethelandform 8 points 1y ago
As a follow up to this, did you have people you could talk out your feelings as your vision loss progressed? My best friend in college was at 10-15%, and my biggest regret was not letting him know that he could talk to me about anything he was feeling, anytime. We lost him in his second year of college when the computer science dept said they didnt recommend continuing. His family said he had a long history of major depressive disorder that he never discussed with our friends or me. Other circumstances also contributed, but what I wish I did was continue to let him know he can share anything, and show my love for him more clearly.

Something that made him really happy was when I described stuff I noticed that day in a funny way over the phone or in text. I started looking for more “small treasures” to share with him, like how shadows overlapped to create a shape, or how a bit of light coming through moss and fog made little stripes in the air. Or a particularly goofy dog. Maybe your friend does not want any reminders of his life before he had significant vision loss. My friend enjoyed knowing that there was beauty everywhere, and I dont think many people made an effort to share the small tiny visual joys with him. I also asked him a lot of questions about what he could hear where he was, how far away he could notice sounds. While you cannot make your friend stop partying and accept what is happening in his life, you can help him notice some of the beauty in the world and that there are many ways to notice and process information beyond vision.

And maybe I also directed the convos more than necessary? Maybe he needed someone to listen and not prompt any thoughts for him.

Sorry to write so much. I hope some of this helps you and your friend. TLDR version, be there for your friend beyond the surface, and create a safe space in your conversations.
JMP09151_ 5 points 1y ago
You seem like such a good friend, the world needs more people like you !! :)
poe9 2 points 1y ago
That’s actually surprisingly helpful. I think as of lately I’ve began to lose patience with him because I’ve outgrown the type of person he’s become and I don’t think I give him a fair chance of just being a person instead of a person who buries himself in addictions and has a tough wall up. I think I could do more to let him come around in his own time instead of making it feel like I’m forcing him. I think you’re right. I’m going to try this new approach. Thank you.

Also I’m sorry to hear about your friend. You did as much as you could to add more vibrance to their life and I’m sure they appreciated it a lot more than you’re giving yourself credit for. Hindsight is 20-20 but we should allow ourselves to give credit to things done, no matter how minimal, more than regretting or being upset about what more we could have done, yennoe?
Kyrie-belier 7 points 1y ago
I just wanted to come here n thank u for doing what u do,u have a heart of gold❤️❤️❤️😊😊
poe9 2 points 1y ago
Thanks Kyrie, I am trying.
MalcolmYoungForever 6 points 1y ago
I'm sorry to hear about you and your buddy. Maybe just have a heartfelt talk with him. Start with how much your friendship means and how you're worried about him. Best wishes.
poe9 4 points 1y ago
I’ve tried but it doesn’t tend to have much of a lasting impression on him. We used to be party 4 or 5 years ago but I’ve really grown out of it and he seems very attached to it still. I think it helps him cope but it doesn’t help him accept or improve.
MalcolmYoungForever 3 points 1y ago
I had a couple friends like that. I had to back off from them.
poe9 3 points 1y ago
That’s how I feel about him now but I feel for the guy.
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