How to cope with loneliness when you're the only legally blind siblings in adulthood?(self.Blind)
submitted by tndarius
I'm turning 30 this year and diagnosed with advance glaucoma 14 years ago. Now I only depends on my left eye that only have 60% functional optic nerves. When combining both eyes I lost 70% of my vision throughout the years. Been through several surgeries and now I have upcoming one due to pressure was not doing well with prescriptions.
The thing about this illness is it makes me more isolated and I always felt left behind with other siblings. Seeing them and family members move on with their life with new family, move out from our parent house or hometown, buying new car, having a career makes me feel I'm worthless. Don't get me wrong I'm happy for them. But you lie to yourself if you're not envy of them.
When it comes to family gathering, I can feel they treat me differently and I don't blame them. I can't relate with their life so there's nothing much to talk about and it makes me became less social and quiet. I'm not expecting this illness affecting my adulthood so bad. Sometimes when time is rough I just want to end my life. Been having that thoughts oftenly but to afraid to commit it. Maybe I still love my life but it was so lonely.
carolineecouture14 points1y ago
I'm sorry you are feeling bad. Please, please don't hurt yourself. Please tell someone about these feelings and ask for help. I don't know you, but I know you deserve to be here on this earth, alive and well.
I have congenital Glaucoma, and none of my siblings do. I've also had multiple surgeries, many when I was a baby and more recently when my pressure was also not controlled by my prescriptions. I know my vision is worse off now, and I feel that it might be getting worse as time goes on.
Growing up, I was quiet and read a lot. I didn't go outside and play with others.
My family wanted to shelter me, but I really didn't want that, so I made my own world in my head. I did well in school. I have my degree, I have a home, and I'm married.
I'm not sure where you are so I don't what resources there are for you but please find out if there are resources to help you with orientation and mobility and school/training.
It's funny that I think my family thought I would be the one to stay home under their wing, but I didn't. I'm the one who lived at school. I'm the one who went out of state for my degree, I had help, and I have struggles still, but I love the life I made. I want the same for you.
Good luck!
divgirlarb7 points1y ago
it seems like you're feeling isolated as you don't have anything that fills your day. If that was right then maybe try to build a life. learn new skills. try to find a passion. I know easier said than done, but unless you're trying, it is never going to happen.
Those skills could lead to bright career, get u to meet people, and move on with ur life.
atleastistoletheshow2 points1y ago
My mum is feeling like this at the moment after the lockdowns we have had. Is there anything you are passionate about?
TechnicalPragmatist1 points1y ago
Your life is worth a lot. So don’t think about ending it.
Also get to know yourself, your strengths and weaknesses, do some self-discovery typology work and self-introspection, find value in life and understand who you are and what you can do to make an impact.
[deleted]1 points1y ago
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mrayne101 points1y ago
I can relate. I was born legally blind with congenital glaucoma. It can be hard for sure feeling like you don't fit in. Ultimately things are out of our control, but we can always work on our mental wellbeing. A mantra that I always think of is 'Change what you cannot accept, accept what you cannot change.' Live your life for you, fill it with things you enjoy. Help is available for dealing with tough emotions: therapy, meditation, breathing, exercise, etc. If you feel alone and like nobody can understand, remember you're not alone because I and others read your post.
BooksDogsMaps1 points1y ago
I can relate to feeling isolated and left out. Because I don‘t know enough about your situation to give advice, here‘s my experience and maybe you can take something from that. First off, I‘ve been legally blind since sometime in childhood, so I had plenty of time to adapt and I received all the blindy training during school, which surely makes a difference. So, school-wise I was always fine and I‘m now an undergraduate student at uni. What I‘ve always struggled with was more the social side of things… being legally blind and an introvert definitely doesn‘t lead to a great social life if you don‘t put some effort into it. What did I do? I started volunteering. There‘s two things to this: On one hand, you get to do something you are passionate about, develop yourself in that area and bring skills you have to the table and on the other hand you get to meet people. I‘m a volunteer in different kinds of stuff, more recently also in a blindness organisation and what I‘m noticing more and more there is that while I wouldn‘t trade hanging out with my sighted friends, this is awesome. Just having that place where people share your experiences, plus with there being a lot of older people I get a lot of positive stories what people still managed to do despite the limitations thrown at us. From this, but largely also from personal experience I‘m confident there are so many opportunities out there. Maybe you need to start with basics like O&M or learning how to use assistive technology. That takes time and can be very frustrating, but totally worth it, because it will open you so many doors (take that from someone who resolutely protested using a cane and braille during a good part of her school years). A lot of things that might seem impossible also really aren‘t if you have the right tools and people around you who are up to do some creative problem-solving.
Altie-McAltface1 points1y ago
I can relate. Especially with the difficulty talking/relating to family members. I have interests that don’t make for very interesting conversation .
TechnicalPragmatist1 points1y ago
Yeah, I can relate most of the people don’t want to have the conversations. The stuff I like makes for very deep and interesting conversations but I find most people don’t want them since a lot of them are scholarly and academic in nature.
atleastistoletheshow1 points1y ago
My mum is feeling like this at the moment after the lockdowns we have had. Is there anything you are passionate about?
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