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Blind and Visually Impaired Community

r/blind

Full History - 2022 - 01 - 09 - ID#s074td

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Nystagmus Podcast (self.Blind)

submitted by frankiecaputo

Hi everyone! I was born with an eye condition called Nystagmus which leaves me with very little control of my eyes. They tend to shake around which leaves me with very poor vision. A lot of us with the condition are legally blind. I have recently created a podcast called the Dancing Eyes Podcast for people with Nystagmus. We talk about what life is like with the condition and share our own personal experiences. Not sure if this is the right place to post this but if anyone thinks they would find any value in this I would love for you to check it out and have a chat with me. Here a link for anyone who may be interested
https://youtube.com/channel/UC80SABvgXcK0eP6-6SksymA

r_1235 5 points 1y ago

Oooh, a fellow blind person with Nystagmous here.

will check it out, thanks for sharing.

frankiecaputo [OP] 4 points 1y ago

I appreciate that my friend I hope you enjoy it!

East_Neighborhood179 3 points 1y ago

I subscribed.. I have a condition called Retinitis Pigmentosa, it is so surprising to know how many conditions the eye can suffer.

frankiecaputo [OP] 3 points 1y ago

Thanks for that! Never heard of that one what’s that like? Yeah there are so many it’s hard to keep up. Nobody I have met before has heard of Nystagmus

East_Neighborhood179 2 points 1y ago

RP is an eye disease in which the retina is damaged leaving the person with tunnel vision or blind. It can also cause other conditions such as glaucoma.. and it is s also a feature of several other conditions.
People with RP suffer from night blindness.

I'll be watching your videos to learn about your condition.. good luck!!

frankiecaputo [OP] 2 points 1y ago

Alright gotcha, learn something new every day. I appreciate that thank you 🤙🏻

arond3 3 points 1y ago

I personnally don't notice the fact that my eye move on their own (except for the seeing poorly part ofc), is it the same for you

frankiecaputo [OP] 3 points 1y ago

Only sometimes when they get bad. It doesn’t happen too much but occasionally they will go crazy and I will notice

arond3 3 points 1y ago

The fun part is when mixing it with more diseases because we love challenging life right ?

frankiecaputo [OP] 2 points 1y ago

Ha yeah that’s the fun part. For me at least the challenge has turned me into who I am today and I gotta at least be grateful for that. I am more empathetic towards others than I might have been without the eye conditions. Do you think you have been impacted in a positive way from your eyes at all?

arond3 2 points 1y ago

It's difficult to answer they are a part of what I am in the way that they influence my interactions with people and my options in life. In a positive way tho i'll think about it.

frankiecaputo [OP] 2 points 1y ago

It definitely influences my interactions w people too. Yeah let me know I’d be curious to hear your answer

suitcaseismyhome 3 points 1y ago

Different diagnosis for me, but I love your logo design.

frankiecaputo [OP] 3 points 1y ago

Thank you! That means a lot. What's your diagnosis?

SeeSawPodcast 2 points 1y ago

Great to see a new Podcast for the Blind and VI!
We'll check it out!

frankiecaputo [OP] 2 points 1y ago

Thank you! Going to go and check yours out too

SeeSawPodcast 3 points 1y ago

Many thanks. If you'd like to team up sometime give us a holla, host T has the eye jiggling fever.

frankiecaputo [OP] 2 points 1y ago

That sounds like fun. I’d be down when I get back from my vacation next week

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