Bring your karma
Join the waitlist today
HUMBLECAT.ORG

Blind and Visually Impaired Community

Full History - 2022 - 01 - 12 - ID#s2bfj6
6
Anyone here have any idea what I'm seeing? (self.Blind)
submitted by blazblu82
Left eye has been having this odd phenomenon for a while and I don't know what's causing it nor does my eye dr and thought maybe someone here might have experienced this. The best I can describe it is a small black blob that rolls up and down from the left corner of eye to bottom of eye. The black blob rolls in both directions. I've asked my eye dr about this and she doesn't know and can't see anything physical. So, I'm guessing it might be neurological? She did say my optic nerve has bumps on it, but she wasn't concerned.

Anyone else have any idea what I'm seeing? TIA!
Fridux 3 points 1y ago
Not sure what it is nor do I know whether it's the same thing, but when my vision began to deteriorate I started seeing fuzzy shadows with random shapes in the periphery of my vision field that disappeared when I blinked, and as my glaucoma progressed, started appearing in places increasingly closer to the center. In very early stages I just thought it was my hair since I had long hair at the time, but not long after I started suspecting it was the beginning of a retinal detachment so had it checked and it turned out to be nothing. I also remember that, after a glaucoma surgery to implant a shunt, my intra-ocular pressure became very low and the shadows concentrated at the top of my field of view, which made me believe I had blood inside the eye until my eyeball healed, the pressure went back up, and the shadows started appearing at random locations again. Nowadays, after losing all my residual vision, the shadows still appear and sometimes cover what used to be my entire vision field which is otherwise filled with hallucinations of what my brain thinks is around me. So in conclusion, and at least in my case, I strongly believe that it's neurological.
AllHarlowsEve 5 points 1y ago
I'd discuss Charles Bonnett Syndrome with the doc, it's a possibility. Lots of people see things like bugs scurrying or things moving around that aren't real. It's just your brain making up for vision loss.

EDIT: app glitched and removed duplicate text.
blazblu82 [OP] 2 points 1y ago
Last time I saw vision rehab dr, he wrote an RX for a website talking about Charles Bennet syndrome. The guy didn't want to address it himself, lol...

I see all sorts of illuminated shapes in right eye, but I figure that's the retina making temporary connections as it bounces around inside the eyeball.

So far, the available help hasn't been much help in my journey. Feel like all they want is my money then shoo me out the door.
SoapyRiley 1 points 1y ago
I have all sorts of blobs and swirls that move in my vision. Doc guesses they are floaters. Some are completely opaque and others are kinda see through. My entire remaining visual field looks like an old movie with static and white lines and flickering black and white spots all over it and they’ve decided that is neurological.
blazblu82 [OP] 1 points 1y ago
I got floaters, too, from a recent hemorrhage along with a field of fine black spots and other larger black spots. Also have a blind spot near center of vision from a coloboma that I didn't know existed until the DX

Left eye is screwed as far I'm concerned. Only 50% acuity at best depending on lighting thanks to photophobia and the other crap I see.
r_1235 1 points 1y ago
Hmm,

For me, sometimes I see randum orange shaped black shapes moving through my field of view, they disappear if I focus with my eyes hard. My Eye condition is Star guardts disease with mild nystagmous.
This nonprofit website is run by volunteers.
Please contribute if you can. Thank you!
Our mission is to provide everyone with access to large-
scale community websites for the good of humanity.
Without ads, without tracking, without greed.
©2023 HumbleCat Inc   •   HumbleCat is a 501(c)3 nonprofit based in Michigan, USA.