Bring your karma
Join the waitlist today
HUMBLECAT.ORG

Blind and Visually Impaired Community

Full History - 2022 - 01 - 15 - ID#s533cf
11
[Vent] Guess a job change is coming... Stupid eye, grrrr (self.Blind)
submitted by blazblu82
Been home from work for a recent hemorrhage in only eye for the past 2 months. Saw retinologist Friday for a check. She said it's looking better on the inside. However, how I see from that eye is another story. Biggest offender is the photophobia and that doesn't look like it'll go away any time soon.

After the dr visit, had to stop by work to talk to HR and a couple other coworkers. They haven't planned anything while I was away to try to ensure my job despite "everyone" there wanting me to come back. The owner, my super and few other higher ups will be having a meeting Monday to determine my fate. They've repeatedly told me they "can't" find anything for me to do on day shift, but would ecstatic to have me back on second. That wouldn't be a big deal if I had a way to get to work. But transportation is the least of my issues if I went back to work.

This photophobia is total BS. The 20-30 minutes waiting in the lobby at eye dr office gave me headaches from the overhead lights and forced me to wear sunglasses. I've experienced the same thing at the grocery store, too. The lights in stores are a lot higher than at work and I can't quit thinking about that. If I can't handle 20 to 30 minutes in a store, how am I supposed to work in a brightly lit room for 9 plus hours a night? Heck, even a 10-minute walk in broad daylight is enough to wig out that eye.

So, dr released me back to work, but I can't get there on second shift. Transportation via Uber is too expensive and public transit does readily reach where I live. My dad works first shift and if my employer finds something for me to do on first, then I can tag along with him until I can make arrangements to move closer to work. I don't think I'll get that chance. HR pretty much told me they aren't setup to accommodate me and even suggested I look into Envision (vision rehab center) for work. And that's when I spilled the beans about my end. I've been in contact with Envision and I even have a phone interview for 2 similar positions with them that would have me working just a few minutes from home.

So, while I'm in limbo land, I'm not making any money from the short-term disability nor my employer. This next week should prove interesting. I'm hoping to work for Envision, but I'm afraid of the pay cut they'll hit me with. I hope that's discussed Tuesday, too.

Anyways, been pretty bummed with the way things are going and even more bummed my employer not trying to help me out. I guess I had a misconception about becoming disabled and thought once I started down that path, things would get easier and more people would be willing to help. So far, that hasn't been the case.

Just wanted to get some things off my chest.
OutWestTexas 4 points 1y ago
Did you discuss the photophobia issues with your doctor? Did she give you any suggestions? I bought VERY dark sunglasses that help immensely. I think I got them on Amazon. Maybe something stronger than the ones you have will improve your situation.
blazblu82 [OP] 3 points 1y ago
She's really only into dealing with the retinopathy. The other stuff she wants the vision rehab dr to deal with. Thus far, the rehab dr hasn't been much help. I've got a dark pair of sunglasses, they don't fit my new glasses, though. In fact, I haven't been able to find any sunglasses to fit over my glasses, yet. Been using clip ons for now.

I try to avoid sunglasses when I can because I don't want to develop chronic dark adaptation. I've read about it and it seems sunglasses aren't a true solution for photophobia, but no one has developed an appropriate alternative, either.
Tarnagona 4 points 1y ago
I have a dark tinted contact lenses with my prescription in them. Perhaps you can get something similar, or non-prescription contacts the you can wear with your glasses.

I have severe photophobia, and as far as I know, the only way to manage it is various levels of tint. So I have my contacts. I have a lighter tinted pair of glasses for home. I have a very lightly tinted pair to wear over my contacts when indoor lighting is still a bit much, and a super dark (I had them custom tinted) pair of sunglasses for outside. It’s a pain needing all these pairs of glasses, but it prevents most of the eye strain headaches I would otherwise get and let’s me make use of the vision I do have.

Oh, I also wear a brimmed hat everywhere. It blocks the light from coming in the top of my glasses, and I definitely notice a difference when I don’t have a hat on.
blazblu82 [OP] 3 points 1y ago
If only you knew me, lol! I have never been interested in contacts because of having to touch my eyeball. Plus, always been told my eyes were not good candidates for them.

I've tried wearing brimmed hats at my job and they do cut down the lighting some, but not enough. Since most sunglasses are polarized, I can't wear them and do computer work. I'm currently trying to find a cowboy hat to fit my head with a thick brim.
carolineecouture 3 points 1y ago
I'm sorry to hear this. It sounds like a lot.
BooksDogsMaps 3 points 1y ago
I‘m also photophobic and I have two pairs of special glasses: one for indoors and one for outdoors. I don‘t know the exact English word, but something like medical filters (in German it‘s medizinische Kantenfilter). Maybe that can help?
HeftyCryptographer21 3 points 1y ago
Thr photophobia is kinda a moot issue. You can get dark sunglasses, black-out contacts, etc. I don't mean that in a dismissive way, just a matter-of-fact way. What job do you do? Can they accommodate you on the first shift?
blazblu82 [OP] 2 points 1y ago
I'm a digital press operator. kinda need healthy eyes for quality control.

So far, my employer hasn't done anything to accommodate. At this point, I think I'd be better off working elsewhere.
This nonprofit website is run by volunteers.
Please contribute if you can. Thank you!
Our mission is to provide everyone with access to large-
scale community websites for the good of humanity.
Without ads, without tracking, without greed.
©2023 HumbleCat Inc   •   HumbleCat is a 501(c)3 nonprofit based in Michigan, USA.