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Blind and Visually Impaired Community

Full History - 2022 - 01 - 31 - ID#sgugzs
15
Support groups (self.Blind)
submitted by kickinghades
My girlfriend who recently became visually impaired, and I were talking about support for loved ones. We were wondering if there are any support groups for friends and family to help them with “tips/tricks” to be more helpful around her. Things like how best to be a sighted guide, or why things have to be back in certain areas. Basically teaching the sighted family what tools are available for the visually impaired. What can we do to make things easier on her. Even a website to better educate us on living with an independent visually challenged individual. I went through this same challenge with my father and always felt like I needed a space to discuss the changes I was seeing in him. As a late teen boy, watching him change in those ways was life altering. Are there any places to help with the psychological side of what the family is going through? As well as places to help show what her physiological needs may be now?
Virtual-Scratch3633 4 points 1y ago
Scope is a website for all disabilities..

Sign up and speak to others who are in the same boat, they are a very friendly bunch and no question is too small
vwlsmssng 1 points 1y ago
Do you mean https://www.scope.org.uk/ ?

OP ( u/kickinghades ) is in Northern California but looking at UK websites like this and https://www.rnib.org.uk/ might still help.

The BBC In Touch podcast could also be relevant

https://www.bbc.co.uk/programmes/b006qxww

also available on Apple podcasts

https://podcasts.apple.com/gb/podcast/in-touch/id261292201
Virtual-Scratch3633 2 points 1y ago
Yeah sorry, didnt think to include the link

They are based in the uk but have some american people who use the site..
vwlsmssng 2 points 1y ago
Certainly the Scope Big Hack project is applicable to everyone across the world.

https://www.scope.org.uk/big-hack/

> Yeah sorry, didnt think to include the link

This is why we reddit. Someone says something useful, next person adds to it.
niamhweking 3 points 1y ago
Where are you based?

There are often parent ones and sibling ones, good question about partners and children.
kickinghades [OP] 3 points 1y ago
Northern California. I wasn’t around much because of college with my dad. And with the girlfriend, she feels that losing vision as a young adult has had no “map” of where to go. Very much an “okay your blind good luck” feeling.
niamhweking 1 points 1y ago
I know in the UK there is LOOK which offers mentoring, a young VI person mentoring a slightly younger VI person

In Ireland Feach offers support to parents and other groups offer the VI person themselves support

Pity support for spouses and partners seems not to exist
TechnicalPragmatist 1 points 1y ago
I am not part of either and don’t support either or a member of either but.

What about the Nfb national federation of the blind or acb american counsel of the blind?

Also what about knowing a few people and forming one. I accidentally help to begin one, or the other people I brought together here did. We were on a blind app and I created a meet up for my own reasons, honestly because they kept talking about it and didn’t do anything. So I did it. We met up here in southern california and then magically everyone else wanted to do it and did it and could do it hahaha! :D

Anyway, this group here in socal not in other places so much as much formed their own get togethers and forumed a support friends group and stuff.. it turnd in to a clique really but there’s the power of forming one yourself.
niamhweking 1 points 1y ago
So I just saw this on an Irish group

https://www.fightingblindness.ie/news/peer-support-group-for-partners-spouses-of-those-living-with-sight-loss/
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