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Blind and Visually Impaired Community

Full History - 2022 - 02 - 01 - ID#si25hk
5
Is there any elitism in the blind community by people who are born blind as opposed to those who lost their sight later in life? (self.Blind)
submitted by Miserable-Trip-3450
Im a writer/director living in Hollywood. I want to make a short film that gives sighted people a better perspective of what it's like to be blind. The film will really heavily on visual effects to try and illustrate what's in a blind person's head/mind's eye as they navigate life. One theme Ive always been curious about - is there any elitism or snobbery between people who are born blind vs those who went blind later in life. Is there a sense that people who are born blind “better" at being blind than those who were once sighted?
Drop9Reddit 21 points 1y ago
I agree to those saying to read the rules on posting and gain some knowledge first. As the other concern I see with your ask is the assumption that everyone is totally blind. When many of us are low vision or at different vision levels.
Miserable-Trip-3450 [OP] 1 points 1y ago
To be honest it didnt occur to me that there would be a list of rules. But ive read them now. Thanks for the heads up
SoapyRiley 18 points 1y ago
The blind community isn’t anything like the deaf community in terms of elitism. We don’t share language and culture in the same way; just life experiences and similar accessibility needs like any other community of disabled people. Honestly it’s one of the reasons hanging out on blind forums is more fun than deaf forums for me even though I’ve been hard of hearing my whole life and VI only a year.
Aranciata2020 7 points 1y ago
I was about to comment that my guess was that OP had watched "Deaf U" on Netflix and wanted to do something similar on the blind community... (I didn't like Deaf U, I thought it was very one-sided, and I studied ASL at Gallaudet for three years + was pretty involved in the DC deaf community.)
Miserable-Trip-3450 [OP] 1 points 1y ago
thanks. Actually the movie I watched was "Coda". A truly brilliant movie. But the premise is a little corny - daughter of all deaf family turns out to be an amazing singer. This film was the initial spark for my idea but the more I research this, the more I realize how varied the blind /VI community is. Also it occurrs to me that "Coda" and other films never really address adult themes like sex drugs and violence. I intend to do this in some way in my film.
Aranciata2020 2 points 1y ago
Yeah, I have very mixed feelings about CODA... It is based on the French film La Famille Belier, which I absolutely hated - it portrays Deaf people in such a bad way, plus the parents are played by hearing actors who make a mockery of sign language. And so much of the story line doesn't make sense - Deaf adults live in the hearing world, and find ways to communicate - they would never have pushed their daughter in front of them to talk to customers, for instance, they would have gestured and lipread and written things down.

The US one is better, because there are great Deaf actors in it, but the premise is still wrong... Deaf parents take joy in their kids excelling at things even if they can't partake, and children of deaf adults no longer have to interpret for their parents.

Sorry, I am ranting!
Miserable-Trip-3450 [OP] 1 points 1y ago
Its OK. I liked Coda because it got me thinking about what it means to be deaf and opened up new perspectives for me. And as you say, the acting was excellent. IN the film the deaf parents ultimately did take joy in the daughters singing talent, but it took a little while to get there and was the premise of the film in essence. I loved it and cried at least twice. Also I dont think that deaf people, (or blind people) are one homogenous block. Im sure there are all kinds of different attitudes and opinions to issues related to deafness or blindness as everyone is different. Im not an expert obvoiusly but I am learning a lot from this thread. Thanks so much Arnaciata :)
OldManOnFire 17 points 1y ago
If there is it's very small. I haven't encountered it yet but I can't say it doesn't happen just because it hasn't happened to me. It's certainly rare. I saw one asshat respond to a post with "Dude, are you even blind? LOL!" and he got downvoted so hard he never came back to this sub.

I was very hesitant to write my first post here because I'm legally blind but not totally blind. What if somebody who was *really* blind just tore into me for stealing the sympathy that rightfully belongs to them? Happyily I've never found anything like that.

We're all survivors of a shared misfortune. It doesn't matter how much or how little of the bad luck you got hit with, you're part of the community. Whether it happened at birth or later, whether it's total blindness or legal blindness, we recognize you.
Miserable-Trip-3450 [OP] 2 points 1y ago
beautifully put
bondolo 9 points 1y ago
I've not seen elitism on the basis of since-birth versus later-in-life blindness in the 30+ years I've hung around blind people in Canada-US. There is an acknowledged difference of experience between those who attended school as a blind person vs those who did not, especially for those that had experiences with "School for the Blind" institutions.

There is some snobbery related to those with low or poor mobility and living skills whether associated with inadequate education, too much parental coddling or failure to adapt to later blindness.
[deleted] 5 points 1y ago
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Miserable-Trip-3450 [OP] 4 points 1y ago
Dear r/blind members. I would like to thank you for all your responses. Even this doubting Thomas one. Since you ask, I didnt just move to Hollywood, Ive lived here 32 yeas. My name is Paul Sapiano - My union is the Directors Guild of America and have written/directed three features now. You can google me or IMDB me. Im the real deal. I was unaware of other directors wanting to make films about blind people. But sometimes Hollywood works like that where films about exactly the same subject go into production at the same time. Maybe right now it has something to do with the fact that "Coda" was such an excellent movie about deaf people and this kind of subject matter is in the ether. I am making short film first and am looking for a blind co-writer/director who lives in the Los Angeles area. My film will be heavy on visual effects and will deal with adult themes. It wont be a Hallmark movie. Sorry if my original post offended anybody. I just didnt know how else to connect with blind people. I did google first but could not find anything about a blindness hierarchy. I truly appreciate the insight im getting. Thanks and feel free to contact me directly if you wish
[deleted] 2 points 1y ago
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Miserable-Trip-3450 [OP] 2 points 1y ago
no problem -Doubting Thomas is a biblical reference but its commonlyused in the UK where I am from. . St Thomas didnt beehive Jesus came back from the grave until he could actually see him himself. Personally Im with St Thomas in this particular instance. What are the odds of a crucified person coming out of a cave 3 days later :)
TXblindman 4 points 1y ago
I’ve encountered a bias at several training centers against telescoping canes.
SqornshellousZ 2 points 1y ago
Lol. To fold or not to fold. Protruding is frouned upon.
lvlint67 4 points 1y ago
https://www.reddit.com/r/Blind/comments/hdkmo9/proposal_readme_for_sighted_visitors_thinking/ probably applies to some extent.
MilkbottleF 3 points 1y ago
To a small extent it does exist, far less so today than in the past, but it's restricted to individuals with bullying, judgmental personalities, it's not a community-wide problem that the average blind person would need to worry about. It seems largely to go one way, formerly-sighted people heaping scorn on the bornblind minority because they are assumed to be ugly useless burdens who probably went to a special school their whole life and don't know how to act right/do anything for themselves (see CloudyBeep's comment above, if you believe in a "hierarchy of sight" there is nothing lowlier than a "person" born without it; they are more tainted by blindness than anyone else). I've never seen the reverse, although I have occasionally heard of bornblind people ignoring or even mocking the sadness and fear that comes with losing one of your senses ("watyou cryin' about, i've been this way for 24 years and i'm doing just fine!", that kind of stuff). These are not popular opinions, it's just that sometimes people become embittered by their life situation and they choose to take it out on others instead of making an effort to learn and grow like the rest of us.
Miserable-Trip-3450 [OP] 2 points 1y ago
Sage words indeed MilkBottleF. Thanks for your patience and understanding. You rock. Now if I could only find out why reddit gives us such crappy handles - yours sincerely MiserableTrip :)
mantolwen 3 points 1y ago
My experience is limited to my fiance and a few friends who have all been blind since birth. However one of those friends is a trainer in Canada to teach people to use stuff like screen readers and specific programs so that they can find work. He normally works with people who are newly blind, and sometimes acts as my tech support because he's very good with computers. I don't think he or my friends are elitist at all, but I can't speak for the rest of the community.
NoSuddenMoves 3 points 1y ago
Check out the Todo-Za
r_1235 2 points 1y ago
Hmm,

not elitism, but, those with late blindness, have more knowledge about how things look, and, depending upon the situation, it could be an advantage or disadvantage. On one hand, they will have trouble adjusting to their new blindness, and on other hand, they just know how the world looks like, so, that could be useful at times. But, in terms of mobility, I've seen both late blind and blind from birth people doing equally good job on the roads. Even those who have little bit of vision, they are on equal footing with other blind people, because, regardless of blindness level, they will have some or the other challenge, and, I've seen both working together as a group, supporting and solving amazing problems together.

There's this blind youtuber, says he is a blind film-maker, his name is James Rath I think. Try looking him up for some more knowledge may be.
Miserable-Trip-3450 [OP] 1 points 1y ago
Thanks so much for this thoughtful response 1235. Its very helpful and I will certainly look up James Rath and check out his content . Much appreciated
bradley22 2 points 1y ago
Not as far as I know but we are individuals so they could be.

My question to you, will the movie be audio described?
Miserable-Trip-3450 [OP] 1 points 1y ago
yes it will be - but I hear a lot of jokes and people talking shit about the quality of audio description on many films. I would like to dig deeper into this and find out exactly what info is required so that VI people can better experience a movie. Apparently the color of the tee shirt the character is wearing doesnt really add a lot. Do you have any advice on how I could improve the audio description ? Whats usually missing? whats unneccessary and gets in the way??
bradley22 2 points 1y ago
I’m not a professional describer but actually, I would mention the colour on the shirt.
There are people who are vi, they use colour every day. If they don’t, they have an understanding of it.
Miserable-Trip-3450 [OP] 1 points 1y ago
Thats good to know. I was watching some blind stand up - I think it was Jim Mcausland - and he had a bot about the description "Door opens...She's wearing a green tee shirt" . Then he says that the green tee shirt is not germain to the plot. I guess I need to learn more about how to get the most out of descriptions. thanks
bradley22 2 points 1y ago
No problem.
CloudyBeep 2 points 1y ago
This isn't my experience. However, something you may find, termed the "hierarchy of sight" is where people with more vision—including people with some residual vision—believe that they're superior to people with less vision—including blind people of course.
grinchnight14 1 points 9m ago
Honestly, as a person who was born blind, kind of. Like I always hear "when I could see" or stuff like that and it's kinda annoying sometimes, especially when those people are some of the only other blind people in the city I live in (Winnipeg). There's not many blind people I relate to or really click with in the city. Those who lost their vision later I've realised tend to complain about it sometimes and I understand that, but like it's still somewhat annoying to me at times.
TechnicalPragmatist 1 points 1y ago
Hey fellow socalian. I am also in the southern california area. If ever you want a real life example let me know. We can meet up or something. I’ve done a lot of representing and advocacy myself so would love to help for sure.

I am totally blind and born with severely low vision and lost it by 8 but had very little to begin with so basically almost totally blind and I don’t remember nor use that much of my time when I could see. I mean there is some things but it is so very few I suppose you could call me not really. I have been blind 20 years now. Totally blind at least. Had light perception could just see if a light is on, pretty useless if you ask me, for many years but somewhere along the lines lost it. I don’t know when!!!!!!!

Anyway, I would say no there is not elitism , but if there is it’s almost the other way. People who feel that they are visually impaired only are more superior then us totals or has to be more protective of us.

A lot of us totals feel very bottom of the barrel and just not really understood.

People can understand oh you. Have a little bit of vision. So you have vision but have problems. I mean not that much, but it’s like

Oh no!!!!!!!!! You don’t have any vision at all!!!!! Poor child. You must be an alien! Even if I am 29 years old that’s their reaction. You’re a foreign creature. A lot of totally blind people feel very disconnected with society, because people are afraid of us. I can give you a video example. I actually did a personality typing video with someone, and someone was able to confirm for me that this man who interviewed me didn’t look pretty and was obviously really uncomfortable around me and that didn’t know what to do because I had no vision. So foreign a thing.


At least with people who had vision they look half normal. I do not. Not because I am weird but because I don’t see or haven’t used sighted body language. To speak. Some get the accusation that you’re faking your blindness. No one ever would think that about me, first I have a cane, secondly I look weird or more weird.


I did another personality typing interview this time with a actual psociologist with a school in kiev, who focuses a lot on body language. I told them ahead of time and on the r/socionics forums said over and over again, I don’t think this is going to work for me. How do you do this tracking of body language and looks with a blind person who basically has none. Some said well you could or didn’t know or just didn’t believe me. I did the interview with this guy and we threw out the evidence of body language basically and just went on other things. He actually tried to pull body language in and it was really funny or weird. I think he said slow moving meaning I didn’t move or gesture or move my face much. Well that’s totally blind people for you that never learnt or picked up body language or facial type expressions. If we do any it’s weird and we just made it up probably not the communal ones you have all learnt. Heh!

I think on this particular forum I think less totals hang out I am in the minority here. I’ve been in places that a lot of totally blind people hang out so yeah. I don’t think you’ve gottne a lot of total type responses here.



How do you define better? I mean like represent it more, maybe but I would say that could also be a really bad thing, coming out like a misfit. I think there’s a lot of in the totally blind communities I am in feeling like…….. we can not fit in to society. And there is often a lot of sheltering and being in a bubble. I haven’t been or I’ve resisted all efforts, my parents wanted to but I don’t let them. Even so I can feel the alienation. It’s much easier to hide being low vision there’s no way to hide being totally blind, you use a cane, and you walk out there. Also we look less natural sometimes. Especially those who were born blind or super super low vision and basically lived a totally blind life.
blindgaming 1 points 1y ago
Bit late to the party here but if you need a consult I'm happy to help in detail. Blindness is a spectrum and it's different for every single individual. Some people struggle a lot with coming to terms with their vision loss. There's sometimes an sense of minimalization regarding people who were born blind versus people who have lost their vision later in life; this stems from the idea that it's "harder" on people who have lost their vision later in life because if you're born visually impaired you've never experienced "normal" sight and thus aren't losing anything. This is a pretty toxic mentality but it happens sometimes. I don't personally come across many elitist or toxic mindsets in the general community although there are certainly some out there. Just as blindness is a spectrum adapting to it is also a spectrum.
A serious piece of advice though: I have consulted on "disability enlightenment" projects before and every time without fail people always put some sort of event, film, or piece of art together that tries to related disabilities and their impact to the non impacted/non affected and they NEVER consult with an actual disabled person on the implementation of their final product. Please, please, PLEASE have someone who's actually experienced these things review your end product and be a part of the creation process. Here's a real life example of why that's important: At Seton Hall University the student body leaders were attempting to put together a demonstration about disability awareness to enlighten and educate people about what disabilities are like, how they impact people, and how those "more fortunate" should assist and be aware of these disabilities: Until they brought me on to consult they had a panel of students contributing ideas and planning everything out- none of them were disabled, had experienced with disabled individuals, or had a medical or social working background of any kind which would at least give them exposure to textbook or social experience of the disabilities they were portraying. Long story short they wanted to blindfold tons of people and spin them around in a chair then have them walk down a hallway with a ton of chairs- they equated all blindness to being dizzy in a hallway with little to no information or value. They tried explaining deafness as someone playing very loud music next to them while trying to have a conversation- being deaf is nothing like that. They tried explaining Autism as taking a test in a language you didn't understand. My whole point is that it was super tone deaf, kind of offensive, misleading, and encouraged people to force "help" on the "less fortunate" without their consent based on presumption. It created more inequality and misinformation.
Good luck on your short film!
kramwam 1 points 1y ago
>really heavily on visual effects

Sounds like the worst medium to present blindness and visual impairment.
Miserable-Trip-3450 [OP] 1 points 1y ago
Hey there thanks for your comment. I am curious though as to why you think this? Most films will either go to black or de focus and let the sound design do the heavy lifting when it comes to a VI persons point of view. I was curious as to what is in a VI persons head as they 'experience" and object by touching? Do sounds or other senses ever represent in the imagination as something that can be visualized? If so then this could be conveyed with visual effects. I havent made any final decisions, but this why I am posting here and researching. Thanks for your input tho. Just out of curiosity, can you think of a better way to do it than visual effects?
kramwam 2 points 1y ago
>a better way to do it than visual effects?

It is definitely going to be a harder task for you to achieve. You have to translate sound and touch to an audience that will use their vision to watch your movie. I personally don't know how to do that as I am not a filmmaker and I don't care that much about the visual effects, I am happy if I can tell the difference between the actors. Sound will be easier, but as for touch...

I personally don't like movies with blind/VI people in them as they are represented or as some weak person with stupid believes (See from Apple) or some maniac (Scent of a Woman). Oh, and Daredevil, for me that was a big LOL. I hope you will do a better job and help spreading the word that we are as normal and useful as people with good vision.

One misconception is that either you have good sight (maybe with glasses) or you are completely blind, but in reality it is a wide spectrum from 20/20 vision to mild VI to some light perception to total blindness. Therefore every VI person has different vision and therefore sees differently. Some lose their peripheral vision, some their central vision, some have a blurry vision, etc. Think about which group are you trying to present to your audience. Also most of us don't walk around with white canes and sunglasses and guide dogs, we just look a bit strange to others, maybe as a drunk person that bumps into things now and then. Oh, and we don't have much body language and don't care much about yours, no blind person will see your diluted pupils or if you blush.

>I was curious as to what is in a VI persons head as they 'experience" and object by touching?

Touch has a high priority for most of us. It is good to understand shapes and texture, but it won't tell a thing about colors. Also it can be dangerous, you don't want your fingers to be caught by a closing door or be cut by a sharp thing. Touch is also important when it comes to following a guide, all I need is to touch his/her elbow and I know what he wants to tell ("stop", "go right", etc) before he speaks a word. Another example is when we pet an animal, lets say a cat, we hear the purring, we feel the soft fur, but have no idea about the color of the cat or if it is looking into our eyes.

>Do sounds or other senses ever represent in the imagination as something that can be visualized?

Not for me, I like sounds as sounds. And when it happens it can be very misleading e.g. there is a person with an awesome voice, than it turns out she is ugly and overweight. Also the focus will be different, imagine a sighted and a VI person go into a forest. One will look at the tall trees, enjoy the green leaves, the flowers beneath them and look at the birds and squirrels, while the VI person will listen to the singing of the birds, maybe touch the trunk of a tree, listen to the rustling of the leaves beneath his feet and feel the wind on his skin. Same place, different experience.
Miserable-Trip-3450 [OP] 1 points 1y ago
Thanks so much for taking the time to explain this to me. I agree that VI people are not always represented in an authentic way in movies. Thats one of the reasons I want to make this short film and possibly turn it into a feature if I can get funding. I suppose I figured that since there are no rules with visual effects and you can animate just about anything this would be the optimal medium through which to show the inner workings of a VI persons mind. The tough part would be finding someone who could accurately impart that to me so that I could begin to design it, and ini way that a sighted person could understand. It might all turn out as a big mess, but I like to try things that have never been done before. Sometimes it works, sometimes it doesnt . I just cant think of a better way to represent the sensation of touching something. I need to do a lot more research but this is all incredibly helpful. thanks so much kramwam
kramwam 1 points 1y ago
Try to also talk to VI people in person, spend time with them and try to see them during different activities, be it cooking, hiking, grocery shopping, reading, going to a concert or to the movies, understand the way they dress or organize the furniture in their homes, etc. I am sure you have a few acquaintances who have some serious vision problems - you may not know about it, because it is not a visible illness and they never told you. But if you look for the obvious signs you will realize (e.g. the guy who never drives). It will be way more useful than reddit.
TechnicalPragmatist 1 points 1y ago
Totally blind person here. I am actually not an auditory learner and probably one of the worse ones. Okay probably an exaggeration. I am actually quite kinesthetics. On the learning styles tests I am logical kinesthetic. So I am actually highly tactile and hands on. So I suppose a good portrayal could be of a more hands on and tactile person. I am also very bodily and my proprioception is actually quite good. My auditory is used of course but those are more of my main focus.

Just because we are blind learning styles can still differ and span the full range. So can personalities. A lot of us still have very different characteristics. We’re still individuals after all.
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