Blind and Visually Impaired Community
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intro, and question about aneridia (self.Blind)
submitted by waxhawlover
hello. first of all, my name is Chris. I am from South Carolina, and have been legally blind all of my life since birth. I was born with what I am told is a rare. I condition called aneridia. anymore. however, I don't think it is as rare as it used to be in the 1980s when I was born.
One of the problems which I experience as part of my aneridia, which I was told is very common is that I have a clouded white calcium deposit which is over the cornea of my eye. I had the white calcium film removed from my cornea when I was a teenager, however have not done so again since. it has become so severe now that my eye is constantly producing sticky matter, which I am assuming is probably drainage from that calcium over my eye. I mean, face it! your eye is only going to be able to hold but so much. lol.
given the fact that I had it removed, but then not even half a year to a year later, it basically just came right back, only more with a vengeance, I'm wondering if it would even be worth me getting it removed again, surgically.
The way I see it is, if it comes back so quickly, it's probably not worth me wasting my time, energy, or money getting things fixed. Yes, it might make me be able to see a little bit better temporarily, but for what cost? I definitely know beyond a doubt that insurance would not cover all of the operation, if any at all.
I guess my questions really are, firstly, do you guys think it would be worth me doing, even despite the fact that the calcium deposit will probably just come right back eventually. secondly, are there any people up here who also have aneridia, who are not completely blind, but do have some usable vision like myself, who have experienced this thing I'm referring to with the deposit over the cornea, and if so, did you ever get it removed? if so, what was your experience in doing so?
finally, are there any online support groups out there that specifically are for people who have an aridia, or know someone who does?
thank you all for any help. I apologize for any typos in this message. I am using voice dictation with my Android phone to compose this post.
One of the problems which I experience as part of my aneridia, which I was told is very common is that I have a clouded white calcium deposit which is over the cornea of my eye. I had the white calcium film removed from my cornea when I was a teenager, however have not done so again since. it has become so severe now that my eye is constantly producing sticky matter, which I am assuming is probably drainage from that calcium over my eye. I mean, face it! your eye is only going to be able to hold but so much. lol.
given the fact that I had it removed, but then not even half a year to a year later, it basically just came right back, only more with a vengeance, I'm wondering if it would even be worth me getting it removed again, surgically.
The way I see it is, if it comes back so quickly, it's probably not worth me wasting my time, energy, or money getting things fixed. Yes, it might make me be able to see a little bit better temporarily, but for what cost? I definitely know beyond a doubt that insurance would not cover all of the operation, if any at all.
I guess my questions really are, firstly, do you guys think it would be worth me doing, even despite the fact that the calcium deposit will probably just come right back eventually. secondly, are there any people up here who also have aneridia, who are not completely blind, but do have some usable vision like myself, who have experienced this thing I'm referring to with the deposit over the cornea, and if so, did you ever get it removed? if so, what was your experience in doing so?
finally, are there any online support groups out there that specifically are for people who have an aridia, or know someone who does?
thank you all for any help. I apologize for any typos in this message. I am using voice dictation with my Android phone to compose this post.
OldManOnFire 2 points 1y ago
Hey Chris, welcome to the sub.
Sometimes it's a good idea to ask why five times.
Suppose you turn on the vacuum cleaner and the power to the whole room turns off. Oops, you flipped a circuit breaker. You could shut the vacuum off, turn the breaker back on, and try again. Maybe it will work this time. Or you could ask why five times.
1. Why did the power go out? Because the circuit was overloaded.
2. Why was the circuit overloaded? Because the vacuum, the television, the PlayStation, the charging station, and the puppy's heat lamp are all turned on in this room and it was too much amperage for a 30 amp circuit breaker.
3. Why is the circuit breaker only 30 amps? Because you bought the house when the kids were babies and weren't using much electricity, back when 30 amps was more than enough, but they grew older and now they're plugged in to everything all the time.
4. Why didn't you see this coming when they started plugging more and more gadgets into the power outlets? Because you took electricity for granted. It always stayed on in the past so you assumed it would keep staying on in the future.
5. Why did you take it for granted? Because reliable electricity is something you grew up with so you never really learned how to balance the load on breakers when you add more and more electric using gadgets.
If you just flip the breaker and try vacuuming the room again you're never really getting to the root of the problem and it's likely to keep happening. But if you ask why five times you'll get to the cause of the problem, and you'll get a few layers deep into it. You end up not only fixing the immediate problem, you also solve the issues that lead up to it so it never happens again.
I don't know anything about aneridia, but maybe you and your doctor should ask yourselves why. Why do the build ups come back a few months after corrective surgery? And when you get an answer, ask why again, and keep asking why until you understand the root cause. Hopefully you'll gain some clarity.
Best of luck with this, and please let us know what happens.
Sometimes it's a good idea to ask why five times.
Suppose you turn on the vacuum cleaner and the power to the whole room turns off. Oops, you flipped a circuit breaker. You could shut the vacuum off, turn the breaker back on, and try again. Maybe it will work this time. Or you could ask why five times.
1. Why did the power go out? Because the circuit was overloaded.
2. Why was the circuit overloaded? Because the vacuum, the television, the PlayStation, the charging station, and the puppy's heat lamp are all turned on in this room and it was too much amperage for a 30 amp circuit breaker.
3. Why is the circuit breaker only 30 amps? Because you bought the house when the kids were babies and weren't using much electricity, back when 30 amps was more than enough, but they grew older and now they're plugged in to everything all the time.
4. Why didn't you see this coming when they started plugging more and more gadgets into the power outlets? Because you took electricity for granted. It always stayed on in the past so you assumed it would keep staying on in the future.
5. Why did you take it for granted? Because reliable electricity is something you grew up with so you never really learned how to balance the load on breakers when you add more and more electric using gadgets.
If you just flip the breaker and try vacuuming the room again you're never really getting to the root of the problem and it's likely to keep happening. But if you ask why five times you'll get to the cause of the problem, and you'll get a few layers deep into it. You end up not only fixing the immediate problem, you also solve the issues that lead up to it so it never happens again.
I don't know anything about aneridia, but maybe you and your doctor should ask yourselves why. Why do the build ups come back a few months after corrective surgery? And when you get an answer, ask why again, and keep asking why until you understand the root cause. Hopefully you'll gain some clarity.
Best of luck with this, and please let us know what happens.
waxhawlover [OP] 3 points 1y ago
The issue is, every doctor in my area has not been able to answer the question of why. They say, it's just a common side effect of having this disorder/disease of the eye. I have gone online and done some research, but everywhere I've looked seems to say exactly the same thing, the reason isn't really known. All we really know nowadays in medical science is that it is a common factor of having an arrhythmia.
Finally, though I understood completely your point of the analogy you made, it took me almost 2 1/2 minutes using voiceover with my iPhone to read before I got to the main logic point that you were trying to make in your response. I wish, with all due respect, the verbiage could be cut down a little bit, and that people would get to the point. That's not meant to be rude, but when I'm trying to get to the bottom of something, and I have to sift through almost 4 paragraphs of material prior to getting my answer, it's a little bit irritating. Just insane.
Finally, though I understood completely your point of the analogy you made, it took me almost 2 1/2 minutes using voiceover with my iPhone to read before I got to the main logic point that you were trying to make in your response. I wish, with all due respect, the verbiage could be cut down a little bit, and that people would get to the point. That's not meant to be rude, but when I'm trying to get to the bottom of something, and I have to sift through almost 4 paragraphs of material prior to getting my answer, it's a little bit irritating. Just insane.
waxhawlover [OP] 2 points 1y ago
Sorry for the typos above in my message. I absolutely hate Siri dictation!
Kelashara 2 points 1y ago
welcome, to the Blind sub Reddit; I’m glad to see you’re here anyway, let us know more about your eye condition it sounds very interesting.
TechnicalPragmatist 1 points 1y ago
Well welcome aboard to this r/blind sub.
RagingRoman01 1 points 1y ago
Hello.
I don’t think I’ve been diagnosed with that condition but I have a calcium layer building on my cornea in my right eye. I had a transplant that caused this for some reason. My cornea specialist told me that removing the calcium would help my vision a little and it would eventually come back. He also told me that he would rather I let it be until it starts bothering me or causing pain. I’ve had it building up for 7 years now and I’ve had no issues besides dry eyes.
I would recommend asking your doctor how long you could go without removing it. You will have to get it removed eventually but if it’s not bothering you there’s no point.
I don’t think I’ve been diagnosed with that condition but I have a calcium layer building on my cornea in my right eye. I had a transplant that caused this for some reason. My cornea specialist told me that removing the calcium would help my vision a little and it would eventually come back. He also told me that he would rather I let it be until it starts bothering me or causing pain. I’ve had it building up for 7 years now and I’ve had no issues besides dry eyes.
I would recommend asking your doctor how long you could go without removing it. You will have to get it removed eventually but if it’s not bothering you there’s no point.
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