So, as my vision gets worse I recognize that driving is more and more perilous. I am already afraid of driving since a sibling died in a crash, so I drive very very carefully. But no matter how careful I am I still have to be aware that headlights, sunlight, and any number of other triggers can cause my condition to have an episode and make my vision go from just over exposed and uncomfortable to completely whited out and useless at the drip of a hat. I try to take every precaution, because I need to be able to drive. I am the one that drives my family around. But it’s becoming a situation in which if I want to drive I have to pretty much save my eyes stamina to do that. So walking around I have to keep my eyes closed a lot of the time to reduce strain so I can get the rough driving. I’m trying to get used to a cane, but I am worried about getting O&M training because I don’t want my license to get taken away if they realize how unreliable my eyes are now. Can they do that? How do any of you who drive deal with it?
AllHarlowsEve23 points1y ago
With all due respect, if you can become totally blind from something as normal as headlights coming toward you, you are a danger on the road. I am very aware of how much it sucks to not be able to drive, but it would suck a lot more if anything happened because of your blindness.
Dry_Director_5320 [OP]-10 points1y ago
Maybe. I can try and reduce how much I drive. Try to get my sister to drive more than me. But on some drives, like to the airport, there is no other way. It isn’t a perfect solution, but if I can learn to get around better on foot without using and straining my eyes that will at least improve the situation, won’t it? I just don’t know how else to get about
DaaxD13 points1y ago
I'm sorry if this comes off a bit blunt or harsh, but English is not my first language. Tactfulness is quite difficult, if you only have bad news.
I just wonder how long you are planning to put off your ophthalmologist visits? Because if you lived where I lived, an opthomologist would revoke your driving licence the very moment they hear you are still driving... and maybe your driving license has been past it's due for quite some time.
The more important question here is this: when you are going to stop driving? What would have to happen before you stop driving? After your next near miss? After your first crash? After you have already injured someone?
Maybe it's better to start preparing for the inevitable, since it's better to have changes happen in your own terms rather than losing your driving licence out of the blue. Although the writing is already on the wall, isn't it?
***
This reminds of a demo video I saw last year (I have a tunnel vision, I can still see forward even without glasses). The video was a comparison between what a normally sighted person pays attention to in the traffic compared to someone with glaucoma. The regular person's focus was bouncing all over over place as they tried to capture everything that was happening in front of them: other traffic, pedestrians, traffic signs and lights and so on.
The glaucoma patient's focus was rather chilling though, since he/she only paid attention to the car which was right in front of them. Only couple times the glaucoma driver focuses on traffic on the opposing lane, but they never focused on pedestrians, mirrors or traffic signs. The VI driver was so fixated to the car right in front of them, that it was actually quite scary.
This makes me wonder... if you would have an eye tracker analyzing your focus when you drive, what would it look like? How much you are really seeing about what is going on when you are driving?
And furthermore, how many close calls you have already had without noticing it yourself?
Cryptic_Spren971 points1y ago
I completely agree.
WanderingAnchorite12 points1y ago
Not being able to drive sucks, especially in the USA, where a car is vital to survival.
But it'll suck a lot worse if you hit and kill a child, which is a very real possible outcome, based in your descriptions.
Please stop driving.
visuallyvictoria11 points1y ago
If you're already at the point of using a cane and considering O&M, you shouldn't be driving, period.
thechristmasbear10 points1y ago
There are few things harder than accepting the limitations of your disability. But from reading your question, my only wonder is if maybe, driving has already gotten to the point that its too risky or painful for you.
SoapyRiley6 points1y ago
Headlights, the sun, reflections of street lights all cause the same whiteout issue for me so I only drive on cloudy days or high noon during the summer. To discourage any “well, maybe it’ll be ok this time…” nonsense, I sold my car then bought a house a 5 minute walk from 3 bus lines. My driver’s license is still valid because the state doesn’t care what my vision is like as long as I can read the eye chart. Same for my doctor. He shrugs me off when I tell him about my glare problems and visual snow because I can read his eye chart-in a perfect clinical setting. We do not live in a clinical setting. Environmental factors affect our ability to see clearly which affects our ability to drive safely. I know you don’t want to. But it’s time. Put down the car keys.
Its0nlyAPaperMoon4 points1y ago
As you said, there is only so much caution you can consciously exercise yet when your eyes become blinded suddenly, there is no exit ramp for that moment. You will be, literally, operating a deadly weapon while blinded. Can you live with yourself if you had one of these episodes behind the wheel, and the car crash killed another person? Would you be criminally liable?
Rather than avoiding your doctor's appointments because you don't want your drivers license taken away, PLEASE create plans to move toward a car free life. It's time to move to a walkable town with ample public transit. Build a new life the way you want to rather than continuing as is, then waiting for the rug to be pulled out from under you. I know in the US we killed most of our walkable downtown streets and public transit to favor car dependency in the 60s-80s, but there are towns making huge strides towards undoing that damage.
Dry_Director_5320 [OP]0 points1y ago
I live in a town with very good walkways and buses, but my real issue is the other people in my life who rely on me driving and having to go long distances to the airport which I have no other way to get to. I’m just trying to figure out how best to transition
Its0nlyAPaperMoon2 points1y ago
Who are the other people in your life who need to be driven around? Why are you driving to the airport frequently? Maybe we can help you brainstorm solutions here.
Dry_Director_5320 [OP]1 points1y ago
My older sister, mostly. She’s autistic and has severe anxiety about driving so if I don’t drive then she won’t get around. And it isn’t that I go to the airport frequently, only a few times a year, but it’s too far away to get there any other way than to drive. An Uber would cost hundreds of dollars, and the train and bus would take several hours, making it nearly impossible to get to a flight in time. I also think that a large part of it is that I have been the one driving everyone around for so long that I don’t know how to transition into being driven around, especially when I would have to rely on others for it consistently. As of now, my sister will drive us if my eyes are completely done at the time, but her having a meltdown while driving is not any safer than my eyes crapping out on me when driving, you know? At least I can still think straight and try to pull over. She wouldn’t. We have a good bus system in town, so I use that often, but it isn’t always an option. Idk. I guess I would benefit most from hearing about how others who have had to give up driving partially or completely get by.
TechnicalPragmatist1 points1y ago
Don’t drive. Take buses, it won’t be the end of your life. For the airport stuff take airport shuttles or fine another route, take trains or reachable type things, maybe even a bus that can get around the entire country. I am thinking of greyhound and amtrak here.
Your ego trips and inflated pride and ego doesn’t help anything. Just!!!!!!!! Put!!!!!!! Down!!!!!!! The!!!!!!!! Fricking!!!!!!!!!! Car!!!!!!!!! Keys!!!!!!!!!
niamhweking3 points1y ago
It absolutely sucks to loose the independence and practicality of driving. I'm not VI (daughter is) but live rurally and couldn't imagine not driving, a few of my neighbours don't drive and I don't know how they do it. They say they don't need it and as drivers I don't think we can grasp that, but to them it is perfectly possible. They rely on others 100%. I know it's something we can't fathom as drivers.
I would try to encourage any other adults in the house to drive, look into carpooling, or where I live there is no public transport so people have agreed (on Facebook community pages) with strangers who do the same route/commute to give lifts in return for petrol money. There are ways around it but it does definitely take huge getting used to when someone has to give up the car
For 2 weeks before Christmas my car was in getting fixed and I felt so useless, had to hire a taxi to bring me and my kids to the town for work/school everyday, I had to get groceries delivered. Couldn't do playdates, hobbies, see people etc.
I'm already aware with "normal" night blindness etc I will not be living/driving in this area when I am older. I will not be comfortable with my or others safety being at risk with my crap driving skills. The only alternative for me is to move to a town.
For my VI daughter I'm aware we will either have to be her driver for life, get her an adult trike (but the distances are still too long for that) or she will also have to move into a town.
TechnicalPragmatist1 points1y ago
You are definitely ego tripping here and your ego is pretty inflated. A significantly enlarged ego isn’t good.
Your replies really aren’t helpful and you are making wild assumptions about my ego. I’m not ego tripping, I’m explaining my situation. I’m 2.4 thousand miles away from most of my family and the for the people I live with I am the primary driver and money earner. Those are the facts of the situation, not pride. I don’t need someone badgering me to put the keys down, what I need is advice on who to transition towards that as a fairly poor person with the additional restrictions I’ve described. So either be helpful or kindly piss off. Not all of us have had a lot of time and support adjusting. My vision only got this bad 2 years ago and I’ve had No Support. Maybe practice a little empathy and patience.
TechnicalPragmatist1 points1y ago
Maybe practice less stubbornness it’s only for your safety there’s a lot of ways besides driving, and that involves public transit. There’s more things then airplanes, trains, heavy rails, and buses. That go nation wide. You really don’t need to drive I’ve traveled around my country alone using good stuff like this it’s possible why do you need an airplane anyway. If you’re open to learning your attitude would be more curiosity and questioning. It’s how you come off.
Dry_Director_5320 [OP]1 points1y ago
I’m wondering what country you are in. In the US, especially in some more isolated places like where I live, getting around by train and bus can be very difficult, very very time consuming (I can’t afford to be away from work for long enough to take a bus for several days) and very expensive. It is also very dangerous for a visually impaired woman, or any woman, to travel long distances alone here. I am very open to learning and advice, but I have also already considered things like trains and buses and am addressing the times when those really aren’t an option. As I previously stated, I already do take the bus around town mostly, but our buses don’t go out of town.
TechnicalPragmatist1 points1y ago
I am also female and in the United states. Traveling alone on trains and buses aren’t really that dangerous.
There’s always greyhound and amtrack.
It’s not that difficult but yes it can take a lot of time, but usually cheaper then plane flights.
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