Okay seriously someone tell me I'm not crazy(self.Blind)
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OldManOnFire9 points1y ago
You're definitely crazy, just like the rest of us. No doubt about it. Pull up a chair.
My brain likes to fill in the blanks for me. I see stuff that I know isn't there. If I'm on the bed and the bathroom light is on I can't really see it, I just see a vague glow coming from that direction. If I turn the bathroom light off the vague glow goes away.
Here's the weird part - if my wife turns off the light and I don't notice her doing it I'll still see the vague glow coming from where it should be. My brain thinks the light is still on and fills it in for me.
In low light environments I can't see my hand in front of my face, but if I put my hand in front of my face I see its outline. But when I turn the light on my hand is actually a few inches left or right from where I was seeing it. Because I wasn't really seeing it, my mind was filling in the blanks.
If I'm walking through a doorway in low light I can see the outline of the door frame, except I really can't. It's my mind filling in the blanks. I end up bumping into it because it wasn't where I saw it. As soon as I bump into it I see it in it's correct position, except I really don't. It's just in my head.
The really weird thing is closing my eyes makes it all go away. My mind knows it's not supposed to see anything when my eyes are closed so it doesn't, but as long as they're open my mind is augmenting what I can see with memories of what's supposed to be there.
I suppose this is an evolutionary adaptation, a way to keep us functioning after an eye injury. Our minds make us see the path to safety so we can retreat and heal. But it's pretty freaky when you're still experiencing it a year after going blind.
EyesR4Nerds4 points1y ago
Are you familiar with Charles Bonnet Syndrome? Sounds similar to what you’re describing :)
And for anyone curious, having CBS is a real trip sometimes lol!
OldManOnFire3 points1y ago
>Charles Bonnet Syndrome
I hadn't heard of it but after reading about it it sounds like what I'm going through isn't uncommon.
EyesR4Nerds3 points1y ago
Not uncommon at all, welcome to the club!
EffectiveYak01 points1y ago
Couldn't be closer to the truth.
I remember waking up one day during my completely blind period and seeing what I thought was a 1950s style "Google Kitchen" as well as an adult Ronald McDonald with dreadlocks with a child McDonald sitting on his shoulders who also had dreadlocks.
Another time I got nothing but spiders for a few days. Yeah that wasn't fun at all.
Oh and then there were at least a few weeks with a bunch of random words just flying across my non existent vision.
I can see more now, but I still have constant sparkles and tv static snow all over the place. Fun times in CBS town.
mehgcap2 points1y ago
I'm glad this isn't just me. I have no night vision at all, as in I can see a streetlight, but not make anything out by its glow. Sometimes, in a dark room, I'll suddenly have an indescribable sensation. It's like seeing how I can in daylight, but there's no light, and the "sight" isn't the same at all. I can't even say it's grayscale, because it's not really seeing. It's as an incredibly odd thing to experience, and just as you say, my brain will fill things in. I'll "see" my hand, but only because I know where it should be. I'll see objects nearby, but only ones I know should be there. Yet, I'm not seeing anything, because of the night blindness, while my brain is completely sure I am seeing everything. It's a bizarre sensation, but at least I now know I'm not the only one who experiences it.
suitcaseismyhome4 points1y ago
Have you asked about visual or optical migraine it's not aura, it is something different. My neuro opthalmology immediately went that route when I had a lot of flashes. I've had migraine with aura for decades in this was different
Good luck
QuentinJamesP893 points1y ago
Hopefully you've already ruled out a retinal detachment? Because that's an emergency.
blazblu822 points1y ago
My visual rehab dr tells me it's Charles Bonnet Syndrome
codeplaysleep2 points1y ago
I have ROP and I get the same thing sometimes. It started in my mid 30s, happened fairly frequently for a few years, and now it rarely happens anymore. My retina has remained stable and unchanged throughout, so it's not like the flashes that they warn you about as a symptom of retina detachment (though you should always rule that out).
My retina specialist says it could be ocular migraines, but otherwise has no great explanation and said that if it's not causing me problems or getting worse, he's not worried about it, so long as I'm keeping up with my annual exam and my IOP is good.
bradley221 points1y ago
I was born blind but I can see lights and outlines.
I see lights that aren’t there sometimes. I’ve checked with SeeingAIwith the light function and there’s no light but my brain convince me there is, it’s weird.
DrillInstructorJan1 points1y ago
You're crazy, but not as crazy as me.
But in all seriousness, yes, I get exactly this. I can't tell you that it is due to the same medical reason as you because I don't have the details and I'm not a doctor, and I have no sight at all. Still I absolutely get this weird sensation of staring into a bright light, without really feeling like I'm seeing light, it's very strange. It's really unpleasant, it can stop me from sleeping and there is nothing I can do about it, but you are not alone.
So long as you have reported it to your medical people I guess it's just life.
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