Blind and Visually Impaired Community
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I’m not sure if I belong here or not (self.Blind)
submitted by Missyls6
I’m not legally blind but I have uveitis and I get a flare more regularly than I’d like and the flare up can last for quite some time, months usually before it’s gone and my sight is back to it’s usual poor sight.
Are there other people here that experience the same?
Feeling like utter rubbish right now and looking to talk to someone who might be in the same boat or one adjacent (covid rules for immuno compromised) and masked?
Are there other people here that experience the same?
Feeling like utter rubbish right now and looking to talk to someone who might be in the same boat or one adjacent (covid rules for immuno compromised) and masked?
Mamamagpie 7 points 1y ago
I have right homogeneous Hemianopsia, but the sight I have left corrects to 20/20. I can read, walk around, watch tv all without my glasses. I just have a huge blind spot. I have often felt not blind enough.
Missyls6 [OP] 3 points 1y ago
I’m at the stage where after 9 years of this. It would make up its mind and go one way or the other but for me to stop being in pain
FoggyRiver 6 points 1y ago
I have a form of uveitis. Big blind spot in my center vision of one eye, vision is 20/200 (or worse) in that eye. The other eye has lots of smaller blind spots and is corrected to 20/30 on a good day. I say good day because during a flare it isn’t anything close to that good. I am not blind, at least not yet.
I am immunocompromised as a result of the medications trying to preserve my vision. I was essentially living in the pandemic before the pandemic. I have been avoiding people & masked in public for over 5 years now.
I am immunocompromised as a result of the medications trying to preserve my vision. I was essentially living in the pandemic before the pandemic. I have been avoiding people & masked in public for over 5 years now.
Missyls6 [OP] 1 points 1y ago
I know what mean about living in the pandemic before the pandemic. I’m immuno comprised too, it feels like I’m just living from set of pills to the injection and repeat.
I don’t know how bad my eye sight will be after this flare but I have always these small blind spots.
I don’t know how bad my eye sight will be after this flare but I have always these small blind spots.
[deleted] 4 points 1y ago
I have uveitis and I feel you. When I have a flare I end up with blind spots that make lots of things hard and exhausting. In one eye the prior blind spots are now permanent. It’s complicated being in a situation where vision loss is likely but (thankfully) not assured. There’s also r/uveitis and the uveitis Facebook group that are sometimes helpful (and sometimes just depressing)
Missyls6 [OP] 2 points 1y ago
Thank you I have joined. Just feel so alone at the moment with this flare up. Quite angry too. I try not to feel bitter but it’s so isolating with no one else around me understanding what it’s like.
[deleted] 2 points 1y ago
It’s so rare. Even eye Drs who aren’t specialists don’t seem to understand how serious it is! The FB group (while annoying sometimes) definitely makes me feel less alone just from knowing I’m not the only one and it really does objectively suck.
Missyls6 [OP] 1 points 1y ago
I have Facebook but tend to keep my distance from it as it can be a bit like stepping into a swimming pool full of piranha at times.
On your comment about doctors though, sometimes I feel like having a print out to hand out.
Thank you for replying
On your comment about doctors though, sometimes I feel like having a print out to hand out.
Thank you for replying
Sal0170 3 points 1y ago
I have uveitis I am legally blind though
Missyls6 [OP] 1 points 1y ago
May I ask? Did you lose your sight as a result of uveitis?
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