Blind and Visually Impaired Community
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[USA] Photophobia - Is it neurological or what? (self.Blind)
submitted by blazblu82
Since the last hemorrhage I had back in November, my left eye has been super photophobic. Is photophobia considered a physical condition or neurological? If neurological and I saw an eye dr who specialized in neurological treatments, what should I expect?
The reason I am bringing this up is out of everything that's going on with my left eye, the photophobia is the most detrimental. Some days, it's not so bad. But other days, it forces me to stay inside with dim lighting; and if I try to look outside, if feels like I'm being snow blinded. If photophobia wasn't so much of an issue, I may not be in the boat I'm in now.
Despite looking for another job, internally, I don't want to work. I don't want to put myself out there just to find out I can't function because of the lighting. Yes, I'd wear sunglasses, but once that eye gets stressed out, things look grainy with the sunglasses on. But, I can't let go of the desire to work. I want an income more than what SSDI can offer so I can live independently again. Things have started rolling with Voc Rehab, but it will take more time to get where I need to be in order to work again.
I hate this situation I'm in and it's driving me nuts not knowing what to do about it.
The reason I am bringing this up is out of everything that's going on with my left eye, the photophobia is the most detrimental. Some days, it's not so bad. But other days, it forces me to stay inside with dim lighting; and if I try to look outside, if feels like I'm being snow blinded. If photophobia wasn't so much of an issue, I may not be in the boat I'm in now.
Despite looking for another job, internally, I don't want to work. I don't want to put myself out there just to find out I can't function because of the lighting. Yes, I'd wear sunglasses, but once that eye gets stressed out, things look grainy with the sunglasses on. But, I can't let go of the desire to work. I want an income more than what SSDI can offer so I can live independently again. Things have started rolling with Voc Rehab, but it will take more time to get where I need to be in order to work again.
I hate this situation I'm in and it's driving me nuts not knowing what to do about it.
Tarnagona 4 points 1y ago
You don’t have the same condition, so it could be different for you. But my photophobia is entirely physical. My cones don’t work properly, so one of (I’d say, the worst) problems that causes is extreme light sensitivity.
achromatic_03 2 points 1y ago
Yeah, prob depends on the condition, but I think mine is also physical. Maybe start with a low vision specialist and work your way to a neurologist?
As far as work goes, maybe a remote position? That way you control the lighting. At my workplace, I asked to be further from a window and could wear a hat to block the overhead lights if needed, but they have a good lighting situation in our building. Best of luck!
As far as work goes, maybe a remote position? That way you control the lighting. At my workplace, I asked to be further from a window and could wear a hat to block the overhead lights if needed, but they have a good lighting situation in our building. Best of luck!
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