Blind and Visually Impaired Community
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People with nyctalopia and photophobia what are your experiences with having it and how did you learn you had it? (self.Blind)
submitted by AlyAzula
TL:DR Does nyctalopia and photophobia fall under a spectrum? Can someone have it, thus need more support than "normal people", but not be as severe as some? Is this not a condition but rather a symptom of a bigger problem? What kind of support/needs did you need to get? I plan on getting checked out soon but some doctors where I'm from are very dismissive and I want to know if I have to keep my foot down for something.
I have pretty alright vision for being 22 years old who is always in front of screens. I can read relatively small letters from a distance with little to no problem. However, I have noticed that compared to a lot of the people around me, I adjust slower to the dark and find it so difficult to work under the sun without sunglasses.
I am not completely blind in those moments, but I find it extremely uncomfortable and difficult to do anything in both low light environments like on the road with just streetlights or under direct sun when it's around 9am onwards. You can never get me out under the sun (even if it's not that bright) and not see me squint for the whole duration when most people just remain normal. Also, according to my friends I can never walk in a straight line when walking with them in the streets.
I would appreciate on learning the experiences of everyone and how y'all manage it. I want to take care of my eyes as much as possible and I feel like I need to address this soon. Thank you so much!
I have pretty alright vision for being 22 years old who is always in front of screens. I can read relatively small letters from a distance with little to no problem. However, I have noticed that compared to a lot of the people around me, I adjust slower to the dark and find it so difficult to work under the sun without sunglasses.
I am not completely blind in those moments, but I find it extremely uncomfortable and difficult to do anything in both low light environments like on the road with just streetlights or under direct sun when it's around 9am onwards. You can never get me out under the sun (even if it's not that bright) and not see me squint for the whole duration when most people just remain normal. Also, according to my friends I can never walk in a straight line when walking with them in the streets.
I would appreciate on learning the experiences of everyone and how y'all manage it. I want to take care of my eyes as much as possible and I feel like I need to address this soon. Thank you so much!
SoapyRiley 3 points 1y ago
Basically bright lights wash out everything like an overexposed photo and make my eyeballs feel like they’re going to explode and any change in lighting leaves me totally blind for anywhere from 5 seconds to 20 minutes depending on how drastic it is.
The photophobia came with a migraine and now it’s stuck in the On position seemingly permanently. My night vision started going when I developed glaucoma and just keeps getting worse.
The photophobia came with a migraine and now it’s stuck in the On position seemingly permanently. My night vision started going when I developed glaucoma and just keeps getting worse.
Snoo_85465 1 points 1y ago
I’m sorry you’re going through this but this is what I’m going through. Can you tell me what is this called so I can tell my low vision specialist?
Major_Confection3240 1 points 1y ago
never had night blindness, but ive always had photophobia, any bright lights have always caused horrible pain and eye strain, i cant even look outside when its cloudy without feeling like my eyes are about to burst
howwedo420 1 points 1y ago
I have both for example shopping at Walmart is a nightmare when I forget my shades. Too bright fluorescent white washes out everything. Direct opposite when it's bright outside in a go into the house or say I go to like a bar style restaurant I usually have to get the server or if I'm with a friend to navigate me to the seat because I can't see because it's is dark to me.
galaxy_rotation 1 points 1y ago
I have both due to Retinitis Pigmentosa which is a category of genetic conditions that affect the rod cells in eyes and also seems to be linked with developing cataracts young. I would recommend talking to an opthalmologist who specializes in retinas since what your describing could be symptoms of a number of things.
I was formally diagnosed using an electrorinogram and field of vision test. It runs in my family so I was looking out for symptoms, but I definitely experienced similar things with squinting more than other people in bright light and struggling to adjust to light changes. Once I was diagnosed, I was told not to drive at night and I mostly avoid driving during the day either. Otherwise, I don't need many adaptations currently.
I was formally diagnosed using an electrorinogram and field of vision test. It runs in my family so I was looking out for symptoms, but I definitely experienced similar things with squinting more than other people in bright light and struggling to adjust to light changes. Once I was diagnosed, I was told not to drive at night and I mostly avoid driving during the day either. Otherwise, I don't need many adaptations currently.
MC_Dubois 1 points 1y ago
Photophobia could be a lot of different things. When I say a lot, I mean a lot. It could be related to your eyes or it could be related to neurological issues depending on other symptoms you are experiencing.
You need to speak with a professional to be properly assessed. Typically an optometrist for your eyes and a neurologist especially if accompanied with other issues.
Prior to seeing a specialist, make sure you have as clearly defined as possible when symptoms started and how they have progressed over time. Also note any other physical issues you may be having. Neurological symptoms can often seem vague to both patients and practitioners. Providers may try to brush things off as psychosomatic prior to proper investigation when symptoms are too vague or outside their area of expertise.
Be adamant that you want to be properly assessed for this issue.
You need to speak with a professional to be properly assessed. Typically an optometrist for your eyes and a neurologist especially if accompanied with other issues.
Prior to seeing a specialist, make sure you have as clearly defined as possible when symptoms started and how they have progressed over time. Also note any other physical issues you may be having. Neurological symptoms can often seem vague to both patients and practitioners. Providers may try to brush things off as psychosomatic prior to proper investigation when symptoms are too vague or outside their area of expertise.
Be adamant that you want to be properly assessed for this issue.
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