Daughter suffered a traumatic injury to her right eye. She’s returning to school tomorrow. Seeking suggestions for accommodations.(self.Blind)
submitted by slynnry
As the title says, my daughter recently suffered a significant injury to her right eye. There were lots of stitches and now a cataract that blocks most of her vision. She can see some light but is very light sensitive. Her principal and I have discussed implementing a 504, but I’m not even sure what kinds of accommodations are available/helpful. I would appreciate some guidance. If you need more information, just ask.
applebutters746294716 points1y ago
She'd benefit from preferential seating on the right side of the room. Does your district have a teacher of the visually impaired you can consult with? That person will want to have your daughter on their radar and can provide more advice. The good news is that most kids with only one eye are successful with minimal accommodations. Reading may be more fatiguing, so request that she be allowed to take visual breaks. Another thing you'll want to think about is protecting her good eye during gym activities involving fast moving projectiles. Either glasses or an alternative activity.
slynnry [OP]4 points1y ago
I will ask about a teacher for the visually impaired. I’m a special Ed teacher in the same district, but have never had a VI student, so I’m kinda flying blind (heh). I like the seating idea. Also, the doctor said no PE for awhile, so no worries there.
Mosquitobait20083 points1y ago
Unfortunately I cannot give you any advice besides: be strong g for you daughter, if you act like nothing is wrong and you keep on telling her that then she will believe you and she wont be stressed.. (btw I am sorry for you and your daughter, I hope she makes a full recovery soon, also I hope that I wasn't sounding like a jerk or something). I wish you and your daughter the best of luck.
slynnry [OP]3 points1y ago
I’m glad you brought that up. She has definitely lost some adaptive skills (has trouble with stairs, can’t wash her own hair). My approach so far has been “I don’t know what’s troubling you, so you have to tell me, be your own advocate.” But it’s all so new, I don’t know the best approach.
Mosquitobait20083 points1y ago
I wish I could help you with this kind of thing but I cant, although I do know someone who can. Leet me find thier username
flower_the_sun_kind6 points1y ago
Some suggestions that warrant discussion with the principal about a 504: being provided notes in an alternative format (large print or digital), a reader for exams, a word processor for exams that include a written component, extra time for exams.
How is she accessing a computer? Can she read with her left eye? Even if she has sight in her left eye, when reading on a screen she would be used to her eyes converging on the screen (assuming she was sighted in the right eye before this injury), so she may find her left eye fatigues quickly or she cannot focus on the screen (or paper or whiteboard) for as long as she could prior to the injury. Depending on how it affects her, that would be a reason for the accommodations of extended test time and receiving notes.
slynnry [OP]4 points1y ago
Those are great suggestions. She is only 7, so her ability to effectively use a computer is limited. Additionally, not a lot of note taking and stuff. I agree about the extra time. Is there a thing for taking breaks? Like if her left eye gets tired?
gofindyour3 points1y ago
Yes she can get breaks! Ask about the teacher of the Visually Impaired. They will be able to help you with all of this
slynnry [OP]2 points1y ago
Will do! Thanks!
MusicLover0355 points1y ago
Is there any reason you guys are considering a 504 instead of an IEP?
In later years (especially middle school and high school) it's really beneficial to be working towards goals sighted peers may not have. E.G. O&M related services, since you said that your daughter is having problems navigating in your house, I'm fairly certain the same thing will happen at school.
slynnry [OP]3 points1y ago
Only because the injury is so recent and we do not know the full extent of her vision loss or the impact on her learning yet. An IEP is definitely possible in the future, but an IEP takes testing and evaluations and time that a 504 doesn’t require, right?
FrankenGretchen3 points1y ago
The 504 law describes the whole iep process. You can receive some accommodations immediately but the process is necessary to officially receive access to most services. So, invoking 504 automatically starts the process that will include her IEP. She will then have at least an initial planning session and an Annual Review/planning meeting for the next year. Evaluations like O&M, low vision exams, and sometimes competency tests are both part of the eval and services she can receive if she needs them. This is how the school figures out how to provide what she needs and also gives the school permission to adapt her curriculum to her needs/limits. (e.g. if gym is required for a diploma an active 504 can negotiate a replacement course.) As parents, you have input at all stages of her 504 process and IEP design/implementation. She does, too, but physical presence in these meetings has age requirements in some districts.
If her situation is unstable or something new comes up, you can request a meeting to discuss changing her IEP but usually, once one is in places, tweeks to services can be made with her teachers without that level of intervention.
slynnry [OP]2 points1y ago
That’s interesting. In my understanding they are two separate things. An IEP is for students who qualify for special education, and for that to be true, it has to be determined that the disability is affecting their ability to access learning. And a 504 was for disabilities that require accommodations but do not impair learning. It’s all soooooo confusing. I’ll talk to the diag on my campus asap.
MusicLover0353 points1y ago
That's sort of true. Blindness/being visually impaired is one of the 13 disabilities that's supported with an IEP, and we can safely say that your daughter is visually impaired (since she can only see light through her right eye). See $1 that essentially outlines the difference between the two. But I'm assuming you want your child to be successful in college/her future workplace. An IEP also doesn't generally give you access to a TVI for your child, an IEP does however.
If you need help advocating for your child, there's the NFB (National Federation of the Blind) who also helps advocate for children at IEP's.
TwinPurpleEagle3 points1y ago
I’ve been completely blind in my left eye since birth. Please let me know if I could be of any assistance. I’d be happy to help.
My parents were advised by my teachers in preschool to get me a handicap placard, and I’ve had one ever since my whole life, despite being unable to drive myself. I had an IEP all throughout K-12, a 504 was never even considered.
Services included a teacher for the vision impaired (TVI), lessons with an Orientation & Mobility specialist, and modified/adaptive physical education. The ophthalmologist stated that flying objects or contact sports are too hazardous given the lack of depth perception. You said navigation around the house is cumbersome – maybe having an Orientation and Mobility specialist provide white cane training would be helpful? They can also help with the lack of depth perception and trouble with stairs.
I was in mainstream general education classes. My accommodations included preferential seating in the front row and large print classroom materials. I had time and a half extended testing time on exams and quizzes, and could mark my answers directly on the test without using a Scantron. My TVI also worked with me to explore any equipment I needed (talking calculator, large print keyboard, magnifiers, large print textbooks, a CCTV, etc). The specifications in the IEP can be extremely precise – mine stated that the use of dark whiteboard marker colors (black, brown, blue, purple) was preferred over lighter colors like orange or yellow.
FlamingWhisk3 points1y ago
Hey. I’m exactly the same but the left eye.
Some tips. Make sure she always wears good sunglasses outside. Safety goggles for anything potentially dangerous. Protect her “good” eye. Yearly eye exams.
She will get through it.
slynnry [OP]4 points1y ago
Thanks. We stopped on the way home from the hospital to buy sunglasses. Even when it’s cloudy, she wears them. Right now she’s wearing a shield, but I’ve seen those patches that slip over a glasses frame. Do you think one of those on a pair of sunglasses could work?
FlamingWhisk3 points1y ago
They should.
carolineecouture3 points1y ago
Does she have someone who can help her as she navigates? She's liable to have problems with depth perception. She might also have problems with steps or areas with poor contrast. How does she have lunch? Does she bring lunch or is there a lunch room? She might need assistance there as well.
Does she have access to a therapist? She might be dealing with being scared of falling or hurting herself. Also she might be dealing with unkind comments or bullies.
Good luck to both of you.
slynnry [OP]6 points1y ago
Thank you for this insight. She is having difficulty navigating around the house, so a buddy is a good idea. She had a zoom meeting with the class today so they could see her in her lil eye patch and she could share her experience. Hopefully that will mitigate some difficulties with her classmates and her own anxiety.
carolineecouture3 points1y ago
I hope it all goes well! Let her know people on the internet are rooting for her!
slynnry [OP]2 points1y ago
Aww! Thanks!
Its0nlyAPaperMoon2 points1y ago
The Jobs Accommodation Network has a list of modifications that might be helpful. $1 You may also want to have her tests and quizzes be oral instead of reading the questions and writing answers.
PaleontologistTrue742 points1y ago
Ask her if she really wants to return to that system. Offer her online learning/packet education as a alternative.
Therapy btws. Trauma like that can sink in like mold on cracked flooring. Ruining the whole thing if not properly treated early.
bradley223 points1y ago
I think a therapist is a great idea.
Hopefully because she’s so young, her eye can either return to What it was or she’ll regain some vision.
flower_the_sun_kind2 points1y ago
Definitely worth asking when making a plan. My understanding is that something like double time gives her time for breaks when it is needed, or having someone read it to her and write for her could be an option so she can essentially sit with her eyes closed and complete the exam.
There are a lot of considerations when accommodations are being made, and with her being young they will change as time goes on if she continues to need them. If you look into 504 plans online you will find that there is a frequency with which the district has to meet with you and her teachers to discuss her plan and make changes.
I work with college students so often the initial goal is independence in preparation for the workforce- but the goal for your daughter may be maintaining pace in the curriculum. So having a test read aloud and scribed for a college student does not lend to the goal of independence - but it would lend to the goal of keeping up with her learning at such a young age.
I hope this helps and doesn't confuse things more! Keep in mind that if the principal has offered a 504, he can likely answer a lot of questions about it. If you ever feel like the district is not providing what is needed, you can discuss that at a 504 planning meeting- or even have an advocate assist you with navigating these sometimes complicated processes.
slynnry [OP]3 points1y ago
Thanks for your response. I am a special Ed teacher, so I feel pretty confident navigating the system. We’ve been reading while in the hospital (me to her and her to me) and her eye does get tired, but because she’s already a struggling reader, I don’t want to just jump to oral accommodations. I’m afraid she’ll lose whatever ground she’s already gained. Am I thinking about that the wrong way?
flower_the_sun_kind3 points1y ago
Not at all- seeing how she performs with reading and then modifying as time goes on makes a lot of sense.
slynnry [OP]2 points1y ago
Sweet. That makes me feel better.
[deleted]1 points11m ago
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bondolo1 points11m ago
Posts and comments must be related to vision impairment and blindness.
TechnicalPragmatist1 points1y ago
Well if she recovers that’s the best of the best. I hope for her sake everything will be recoverable and everything will be great! If not then I would have her get some training on independent living skills, starting to learn some assistive tech and such and maybe a little bit of mobility but with one eye working things should be fine. And that I think still doesn’t make her legally blind because she’s got one perfect eye unfortunately. But she can still use tools. May not be easy getting lessons for those things though.
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