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Blind and Visually Impaired Community

Full History - 2022 - 03 - 25 - ID#tnkyjf
11
Evisceration Surgery Nerves (self.Blind)
submitted by floralcanvas
I’m (F22) having an evisceration next month in London and am quite afraid of the pain and recovery.

I’ve had many surgeries before so the anaesthesia doesn’t bother me.

But I’m queasy when it comes to eye blood and discharge. I’m worried about doing too much physical activity and messing up the recovery and how an implant is going to feel. I’m nervous of the swelling and sleeping and everything really.

I have to fly to London from Ireland for the surgery.

My pre-op consultation is coming up so I’ll be able to ask the surgeon more questions then but I don’t even know what to ask.

Can anyone here chime in?
codeplaysleep 2 points 1y ago
I had my left eye removed when I was 17. The pain after the first day or two was honestly pretty minimal. I think I took one or two of the prescription pain meds they gave me and then managed it with over the counter pain killers. If I didn't bump it or rub it, I didn't really notice much pain after a couple days, just some pressure from the swelling, which went away over time.

I was in less pain the morning after the surgery than I'd had from the eye itself the day before surgery.

I had my surgery on Thursday and was back to school on Monday without any issues. It was a few weeks before I could do any heavy lifting, but I was able to wear/use my normal backpack of books and binders around school.
[deleted] 1 points 1y ago
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codeplaysleep 1 points 1y ago
I mean, obviously, it's a hard prosthetic and not a squishy eyeball, but it's not uncomfortable. I have bad allergies and it does tend to get a little crustier than my real eye, but antihistamines help with that.

The particular surgery I had didn't affect my tear ducts any, so no real change there.

In general, it feels very similar to just having an eye. If I really pay attention, I can tell a difference, but barely.

I can't do heavy lifting for other medical reasons, but the prosthetic eye is not a factor.
[deleted] 1 points 1y ago
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[deleted] 2 points 1y ago
Hello, I have eye complications due to my diabetes and had 9 operations and 6 injections in my eyes over the past 3 years. The injections I've had I got eye drops that was supposed to sedate the eye but only worked 3 our of 6 times and unfortunately it's crazy what you can go thru when you tell yourself it's what's best for you. I've also become used to having thing done to my eyes so I have a little rutine now so I thought I would share this with you, maybe there is something you can use.
So firstly my surgeon always told me no heavy lifting for a week before surgery and 2 weeks after, he said my limit was 1 kg.
I had to mentally prepare, I suffer from anxiety, not related to this but it kind of effects the situation and I don't eat medication but use music to handle it. So I listened to a lot of Tibetan singing bowl music leading up to surgery to get into a positive head space and my nurce even let me listen to music while they were getting me ready for surgery and kept my headphones and phone with them so I could use when I came out of anesthesia. So if this is something you can use I strongly suggest you have an open dialog with the medical staff before surgery.
During my recovery time at home I had prepared things to keep my mind occupied and thing that gave me comfort. I downloaded lots of podcasts and audio books so a screen wouldn't overwhelm me, I had prepared my favorite foods( with lots of vitamin A) and put in the freezer that was easy to reheat because during the healing process I knew I needed energy to heal and had to learn the hard way after my first surgery that I didn't want to cook and shop so I had to rely on unhealthy take away. I make sure I have done my laundry and changed my bed so I have clean sheets so my bed is comfortable. Do everything in advance that can bring you comfort and make your life easier. Dealing with any kind of procedure in your eyes can be mentally exhausting so also take care of your mental health and remember it requires energy to heal.

I hope surgery goes well and that your healing process will go great. Please feel free to write if you feel I might be able to give you an answer or help. Best of luck
[deleted] 1 points 1y ago
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[deleted] 1 points 1y ago
I'm sorry for my late response, I'm dealing with Greif issues so I'm a little unstable atm but wanted to get back to you. I hope others with similar experiences to tyou have also responded since my eye situation is very different from yours. You are however the first person I talk to whom also had needles in the eye and could feel it and it made feel not so alone so I'm beyond grateful for that. It is impossible to explain that feeling because most people go through life never experiencing pain it the eye but it's now my motto. I've survived needles in my eyes so bring it on life 😊

So I was told not to bend over but to bend at the knees to avoid pressure in my head and no exercise or heavy lifting. The sleeping on the side thing as well and that was difficult because I naturally sleep on my side so I made a pillow fort around my head so it was just my body laying on the side. I also got a sleep mask, just a normal one so I wouldn't touch my eyes while sleeping.

I'm not going to pretend I know what you are going through or how this process will be and honestly I would probably feel like you do about the eye socket that you do. I do however have a good friend who got a glass eye in his late teens and had multiple surgeries before that. I talked to him. In advance, I apologize if my bad English has misunderstood your procedure, I Googled the words you used and talked to my friend. He said this, he can not feel any weight differences at all and he said he wore an eye patch to bed for a long time after surgery because he was freaking out about something happening. He also spoke about breathing exercises up until the surgery and aft because it gave him so much anxiety and he recommended that maybe find a therapist because, and I agree, Noone tells you having eye issues on this level in a non stop psychedelic experience.

Again, lots of good energy your way and hope the very best. If you feel up to it, please let me know how you are doing after your surgery or feel free to pm me if you need some company post surgery.
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