Blind and Visually Impaired Community
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Just really frustrated (self.Blind)
submitted by groovietimes
It's been appointment after appointment lately. One with a regular optometrist, who said I had a possible mass in my eye. He sent me to a retina specialist for that, where I had an ultrasound and was cleared of having any masses. I then had a follow up with them to do a field of vision test, which apparently came back normal.
Then I had an M.R.I to rule out the possibility of a brain issue. The results for that came back normal too. I'm scheduled to visit a neuro ophthalmologist in May. The retina specialist says he's seeing a severe degree of vision loss, but all of my tests are coming back normal.
Nobody knows what could be wrong with me. I'm really just frustrated and venting is all. All of these back to back appointments are wearing on me. and It's just growing more distressing by the day knowing that I could have some weird eye thing. And the being sent to higher and higher up specialists because nobody can figure it out and then I get sent to the next guy.
Then I had an M.R.I to rule out the possibility of a brain issue. The results for that came back normal too. I'm scheduled to visit a neuro ophthalmologist in May. The retina specialist says he's seeing a severe degree of vision loss, but all of my tests are coming back normal.
Nobody knows what could be wrong with me. I'm really just frustrated and venting is all. All of these back to back appointments are wearing on me. and It's just growing more distressing by the day knowing that I could have some weird eye thing. And the being sent to higher and higher up specialists because nobody can figure it out and then I get sent to the next guy.
Migmatite 16 points 1y ago
Well, good news, Neuro Ophthalmologist is the highest you can go. Might take a couple of genetic test and other lab work and might take two appointments to reach a definite conclusion but they'll be the ones to find out what is going on.
MC_Dubois 3 points 1y ago
I second this.
It is really hard getting through daily life when you are in the stage of getting a diagnosis and having to see multiple specialists with bi answers. Most people do not understand the feelings that go along with this until actually living it themselves.
A neurooptometrist is the most likely place to find answers. Neurological issues are generally harder for medical practitioners to differentially diagnose unfortunately unless its a tumour/mass.
It is really hard getting through daily life when you are in the stage of getting a diagnosis and having to see multiple specialists with bi answers. Most people do not understand the feelings that go along with this until actually living it themselves.
A neurooptometrist is the most likely place to find answers. Neurological issues are generally harder for medical practitioners to differentially diagnose unfortunately unless its a tumour/mass.
RagingRoman01 5 points 1y ago
You’re justified in feeling frustrated. It’s a long process and it’s not good on you mentally not knowing what’s going on. Hopefully they find out what’s going on and hopefully it’s nothing major or anything at all. Regardless of the result, you’ll feel much better once they find out what’s happening.
I recommend going out to eat at a nice restaurant after your appointments, or just treat yourself to something to try and lift your spirit a little. It’s going to be rough but you can do things to make it bearable for the time being.
I recommend going out to eat at a nice restaurant after your appointments, or just treat yourself to something to try and lift your spirit a little. It’s going to be rough but you can do things to make it bearable for the time being.
snimminycricket 2 points 1y ago
Yes. This has worked since I was a kid going to stressful appointments with my mom. We liked to get bagels and hot chocolate afterwards. Now my spouse and I use ophthalmology appointments as an excuse to go out to lunch or something afterwards. It helps!
RagingRoman01 2 points 1y ago
Yes that’s where I started too! My mom used to take me to the doctor and after we’d go to McDonalds. I was always visiting the doctor back then and the McDonalds trip after made me feel less nervous about going.
It’s great that you and your spouse get to do that. Any extra time together is appreciated especially if it’s something you have as a routine. My mom still takes me to my appointments 😂😭 and it’s guaranteed that we’re going to stop for some iced coffee and breakfast.
It’s great that you and your spouse get to do that. Any extra time together is appreciated especially if it’s something you have as a routine. My mom still takes me to my appointments 😂😭 and it’s guaranteed that we’re going to stop for some iced coffee and breakfast.
snimminycricket 2 points 1y ago
When I have my ophthalmologist appointments every other year and I have to travel to another city an hour north for them, I've had my mom meet us there sometimes (she has to travel an hour south to get there). Then we make a day of it! I also had my sister meet me there one time and that was fun. I use it as an excuse to get together with people.
After I posted my earlier comment I decided to text my mom to tell her I was sharing our post-appointment ritual with people on reddit. We ended up going for a long stroll down memory lane, recalling some of our adventures of that sort. It was so nice!
After I posted my earlier comment I decided to text my mom to tell her I was sharing our post-appointment ritual with people on reddit. We ended up going for a long stroll down memory lane, recalling some of our adventures of that sort. It was so nice!
GTbuddha 2 points 1y ago
I'm still waiting on a diagnosis. It has only been over 45 years of eye doctors and 44 eye surgeries. You would think that they could have figured out something after all that imaging, actually being inside my eye, removing an eye a couple of times and working on it and putting it back in but nope. I feel your frustrations.
WEugeneSmith 2 points 1y ago
I completely understand your frustration. This kind of limbo is very anxiety-producing.
Take it one day at a time. Also, I really like the idea posted by another commentator to build in a visit to a special restaurant, or some kind of treat, with each appointment.
Take it one day at a time. Also, I really like the idea posted by another commentator to build in a visit to a special restaurant, or some kind of treat, with each appointment.
TechnicalPragmatist 1 points 1y ago
Hopefully you’ll find it. But also blindness is not the end of the world. And blind people can live a full and contented life while doing a lot.
FunnyDifficulty6 1 points 1y ago
I see
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