I'm 22 and I live a completely miserable life.(self.Blind)
submitted by Coehio67
Hi,
I lurk a lot but I don't post in general and even less on this sub
I'm 22 and have congenital glaucoma , I have about 2/20 vision (I know in the US you have other measurements) so basically I see very very badly
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However I see enough to get by in everyday life, I'm in law school and I use NVDA for the net
Here, the problem is that at 22 years old I still haven't accepted my handicap, I experience it extremely badly and it crush me every day that passes.
I still see well enough to play video games and watch series and others sings like that but when I move around you can clearly see that there is something strange, I have already been asked if I was drunk for example lmao
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it's been a good ten years that I've been recommended to take a cane but I just can't manage it, I'll do it once or twice to please my parents and then I'll put it away because it covers me with shame . I see people making room for me to walk, I see them looking at me, the children looking strangely etc.
But as said, I'm not doing well enough to move around without it, let's say I survive more or less
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I have absolutely no social life or anything, I basically know how to go to college, go home and that's it, my days are just going on 4chan, a little reddit and playing video games
I've heard the usual advice given to people like me a thousand times:
\>going into associations with other blind/visually impaired people
\>Go to a psychologist
\>etc etc
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But I just can't, I tried some associations, and overall it's just ultra cringe, I see these people and basically a lot of them are just the type of people I hate: People who live off neetbux, still with their parents and even thoses who have studied have at best positions in the public service just because one or two disabled people had to be placed
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It's sad to say but I think the majority of visually impaired/blind people just cope with their lives, you see some members on this sub who seem to be doing fine but the other 95% live just completely pathetic lives (off course i'm like that)
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So... Sorry for my negativity but this is the only place I know where people have experienced this kind of thing
synthpopolis17 points1y ago
I’d probably have a bit more empathy for your situation if you weren’t basically insulting other blind people, many of whom due in fact live full and meaningful lives, hold down challenging and rewarding jobs and all those other things you don’t seem to think they can do. It sounds like your real issue is that you have a negative opinion of people with disabilities so naturally you feel terrible about yourself as somebody with a disability. That’s about all I can say right now without probably saying things I might regret later. LOL
Coehio67 [OP]-3 points1y ago
I know it will not be appreciated here but yes, I generally have an inglorious opinion of people with disabilities and that is because I have known many of them.
Unfortunately real life is not like in the moovies, the majority of people with disabilities are not Hawkins and Ray Charles, many (me especially) live sad lives
synthpopolis13 points1y ago
It’s one thing to talk openly about the challenges we face as people with disabilities, but the statements you are making are borderline offensive and bigoted. Sorry if that’s not your intention. If it’s not, I think you could probably approach this from a much better angle that will yield much more helpful responses
Coehio67 [OP]3 points1y ago
sorry, i didn't wanted to be rude toward anyone
synthpopolis2 points1y ago
It’s all good, and if I’m being hyper sensitive or misinterpreting you, then I apologize
Tarnagona12 points1y ago
Of course not every disabled person is a Stephen Hawking. But not is every able-bodied person. If someone has a decent job and a nice place to live, even though they’re not amazingly talented or famous, do you assume they have a miserable life? Probably not. So why are you assuming that of people with disabilities? Certainly, that’s how this post reads.
I also know many blind and partially sighted people. Yes, some of them are unhappy, and having a hard time. But many of them are happy, have supportive and loving friends and family, a decent job that they enjoy (and weren’t just a pity hire). Myself included. I have my PhD. I have a decent job that I enjoy. I’m getting married in two months. I still live in the tiniest apartment because housing prices are ridiculous, but we’re saving up to buy a good house eventually.
If you aren’t running into any of these people, maybe you aren’t looking in the right place. Lots of people lose sight later in life, so a general peer support or social group might have more older, retired people. Try looking for a group for people your own age. Maybe a group for young professionals. You’ll probably find people you have more in common with.
In the end, though, I don’t think you’re going to be happy with yourself and unashamed until you get over your internalized ableism, your feeling that people with disabilities are pitiable and miserable, yourself included. Without working on that, no matter what you do, you’ll continue to hate yourself. You won’t be able to bring yourself to use your cane or other accommodations, or to put yourself out there to meet people and make friends.
I don’t have good advice on how you go about that, unfortunately. I grew up mostly blind, and went to a school for the blind so had exposure to other people with sight loss from a pretty young age. But I do think you need to focus on shifting your own attitude, and the rest will follow from that.
WEugeneSmith2 points1y ago
I know you are in a very bad place right now, and you find it difficult to visualize a world in which you can build a life.
But you can build a life, just as many other bild and otherwise disabled people do. Most likely, these people were once where you are now. The difference is they probably sought and accepted help in coping.
The others who have pointed out that you are insulting other members of the disabled community are right. Stop doing this. It won't help you in any way.
Instead, focus on what you need to cope. Take it one day at a time. You are young and you have your whole life ahead of you. Use that time wisely.
You can work your way out of this terrible place, but you need help in order to begin. Best of luck to you.
howwedo42012 points1y ago
I don't mean to sound blunt, but you get what you put in. If you're not willing to go that extra mile you'll never achieve what you want to achieve and get out of the negative mindset that you're in.
You can set behind the screen feel sorry for yourself or get up and do something about it.
snowcrunchy10 points1y ago
I'm 22 as well, and completely blind.
In my opinion the reason you feel this way is your internalized ableism. Not to sound like a total SJW by using that word, cause I know that can be off-putting, but I need you to know that disabled people (blind people included) don't just sit in their house and mope all day, they're not boring, and they certainly don't live pathetic lives.
Me for example, I'm a student, I have a job, I have friends and hobbies, I want to move out and live by myself once I graduate. I date and party and have fun :)) I'm literally the exact same as any other 22 year old girl! I'd even say, although it's a pain in the ass sometimes, being blind is the least of my problems. Your disability definitely won't limit you as much as you think.
I used to be like you for a long time, I thought that all my problems would be solved if I could see. I felt self conscious when I used a cane, and like I was in people's way. But I promise you this will all pass and is definitely not the case! You are not in people's way, using a cane is nothing to be ashamed of, nobody gives a shit what someone needs to get around.
And I'm not saying it's gonna be easy. Nobody's gonna be able to accept it for you, you have to do it, or you actually will live a pathetic life and feel miserable all the time! It's okay to be miserable sometimes though, everyone does no matter what's up with them lol. Your diablility doesn't need to define you. It's just one little part of you.
Sorry if I seemed harsh talking about all that. If you ever want a friend to rant to, message me on here and I'll give you my Discord :))
carolineecouture10 points1y ago
I have congenital Glaucoma as well. I had my first operation at three days old.
My life is not sad. I have a job, family, and friends.
I think you really should seek out some therapy for yourself.
You are saying that people have offered you assistance and perhaps solutions, but you don't want to try them, and then you complain about how you have no assistance or solutions.
You only get one life, don't waste it.
Good luck to you.
SoapyRiley7 points1y ago
If you don’t like your outfit, you change it, right? If your meal is too bland, you add some spices. So if you don’t like your life, change it! Disability is just a problem to work around. Life comes with problems-for everyone. You aren’t special in this regard. The difference between success and failure lies in your ability to tackle the problem and either fix it or work around it. You aren’t doing anything but complaining about it.
Look, I have a job in the private sector supervising stock brokers. I wasn’t a pity hire. They needed me for my qualifications and critical thinking skills. Your sweeping generalization is flat out wrong. Maybe work on your skills instead of coming in here throwing a pity party and then insulting those of us who have worked hard to fix our problems so we don’t have to live like you are living.
I’ll help you start with solving your most basic problem: worrying about how others see you with your cane. Close your eyes and go about your own business. Cane travel doesn’t require vision. Nobody else is going to respect you until you learn to respect yourself and you won’t learn to respect yourself until you’re independent and have some sense of accomplishment.
Virtual-Scratch36336 points1y ago
I think you'd benefit from joining scope. It's a website/forum for disabilities, not blind just in general. It's a great way to connect to others, also they have quizzes, coffee meetings and support from those who really do understand in all aspects of life. I know its not the same as physical social interaction but it wouldn't hurt to check it out..
As for the percentage of people who live a "normal" life you mentioned, every single one of those people have struggled at some point. I am blind. I am deaf too. I do not choose to be a statistic. I have a job I love. A son i adore (unless he is being mouthy!) and I live independantly with my son. I choose to own my handicap. I can't change it, I can own it. You need to alter your mindset. Change your perspective. Focus on your goals. Know what you want out of this life. And fight for it
codeplaysleep4 points1y ago
You've got to figure out what you want to do with your life. Of course you won't be motivated to improve your situation any if there's no goal to work toward. Without that goal, it's easy to get stuck sitting around feeling sorry for yourself over the things you can't do. So pick a direction and start moving.
My vision's about the same as yours, but I only have one eye. It doesn't really stop me from doing any of the big, important things I want to do in life. Sure, it means I have to work out the logistics on some things (e.g. not being able to drive), but there's always a way. I've got a degree, a house I love, an amazing family, friends, a career that's well into 6 figures.
Being blind won't hold you back nearly as much as telling yourself you can't do something will. Your vision loss and your self-worth aren't related.
Don't be ashamed of the cane. Being ashamed to use a cane is like being ashamed that you have brown hair. No one else cares and it's not your fault. Blindness is a medical condition, not a moral failing.
BlindBear9024 points1y ago
You need to stop associating success and intelligence from having a piece of paper aka degree and thinking less of others who don’t. Some of the smartest people I know never stepped foot into a college course. Don’t let society dictate to you a false picture of what a good life should look like. Make the best of your situation. I think the best thing for you to do is put your self in more uncomfortable situations so you can grow and become More humble.
DHamlinMusic8 points1y ago
This, I mean we have grad students in here every day that cannot seem to grasp the rules about where to post their surveys lol, and those people are usually sighted.
sicklixix3 points1y ago
Wow, I do relate to you .
However, there are some blind people who seem to be successful in the tech industry. Maybe that's not your thing but you can definitely get a proper career with your disability. There's always a way.
Maybe the first step for you is stop being ashamed of your disability. You don't have to let it define you.
I'm visually impaired, just like you I can see enough to do some things but I need assistance or a cane for others.
I dropped out of college a few years ago and now I sometimes do freelance work. I could get back into life if I wanted to but more than my visual impairment it's my depression and lack of motivation that's stopping me. I also dropped out of college because I simply didn't like it , nothing to do with my blindness. I'm also not living with parents or anything. In fact I went to college abroad, travelled after I dropped out and now I live in a totally different country.
If you don't feel comfortable joining blind associations or whatever , you don't need to. You also don't need for see a therapist if you feel like it's not something that would help you. Just take time to grieve your vision loss , don't put any pressure on yourself. Let yourself feel miserable, and maybe eventually you will come to accept that your disability doesn't limit you as much as you think.
Of course, this world is built for the sighted but there's always something for everyone. You might have to work harder to achieve your goals than a sighted person , but it's all still doable.
Coehio67 [OP]1 points1y ago
Thank you very much for your advice and for taking the time to answer me.
I'm just afraid that moment will never come, it's been like this for 22 years and I feel like it's getting worse
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aNonHumanRobot2 points1y ago
At one point i tried to hide my vision impairment but it got to the point where I really couldn't. I tried to fake it as long as i could and to the point where noone knew i had any vision loss except for famoly. Everyone thought i was clumsy and needed better glasses. My vision got worse and i couldnt do it anymore. I was absolutely in some deep depression and i wont go into hiw deep but it was very bad. One thing that really helped me was a therapist that i could relate to. I tried a few different ones but I found a therapist that was visually impaired as well. Met with her for about a year, once a week. She actually specialized in drug rehabilition or some such, which I was not there for haha. She was great. She had such good insights into daily life and learning how to move beyond coping but accepting my vision. She really changed my outlook on life and gave me the desire to move on in my life and not let my vision define me. I'm not done with my journey of acceptance and I have a long way to go.
groovietimes2 points1y ago
Hey, you're still a very young person, 22 is barely an adult. You still have a lot of time to figure out how to live a happy and successful life. And sorry if it offends you, but maybe some therapy could help you work through some of your opinions about disabled people that you seem to have internalized. Those types of opinions seem to be effecting your self esteem. But I believe you can figure out how to live a fullfilling life. <3
Wolfocorn202 points1y ago
i can kinda relate to this. A few years ago i was in a simular situation trying to be and look as normal as posible despide being legally blind and my familly basicaly forcing me to use my cane and stuff.
It's really hard to explane how it happend but i started to realize that having a disabillity is nothing to be ashamed off and that using the things provided to help will only make life soooooooo much easyer.
I live on my own, have wanderfull friends, some nice projects i'm working on, fun hobbies and an amazing guide dog. My life is nothing special and to the public i'm just that blind kid from down the street but i'm happy and if people staring at me and having to walk around showing i'm blind is what it takes than that's ok with me.
You won't get a second chance at life but it's up to you to decide what you wanna do with it. Good luck my friend.
Coehio67 [OP]1 points1y ago
Thank you for the answer and the advice, you are the second person to tell me more or less the same thing (that it will pass with time) it is very reassuring
Wolfocorn201 points1y ago
Yep it will take time and it's diferent for everyone. Perhaps looking up some of the more positive things about blind people might also help. Don't know where you're from but a few country's in Europ have this organisation called ICC who organize summer camps for the blind age 16 to uhm 21 or older i'm not intirelly shure. They organize all sorts of workshops about diferent topiics and you'll meet lots of people there that might be able to help you out a bit.
EyesR4Nerds2 points1y ago
Hey OP, may I ask you a question? What exactly is it you want from your life? Other than not having a disability, which isn’t possible, what do you actually want to achieve or accomplish?
Virtual-Scratch36332 points1y ago
Reading through all these comments, gotta say love the name!
EyesR4Nerds1 points1y ago
Lol thanks!
Coehio67 [OP]1 points1y ago
I have no idea, I avoid thinking about the future as much as possible, just coming to this sub is a huge effort
I'm sorry if I came across as insulting, I just think seeing visually impaired/blind people living rich lives and overcoming their disabilities is something that to me feels so far away and innacessible
EyesR4Nerds1 points1y ago
Nah, I’m not mad, just trying to figure out how to help.
TechnicalPragmatist1 points1y ago
Wow! Does this not look a lot like projection? And really bad ego defenses. Or something like that going on.
The way you just put down a bunch of people but seem to be worse for it then the rest or just the same. That’s pretty crappy or bad.
I think you need to do a lot of introspection and self work. Understand who you are. It will also help you find out what you want and who the inner core of you are. Maybe that wil help you get healthy and realize who your true strangths and weaknesses are and help you move on and use them.
PungentMushrooms1 points1y ago
As someone else already mentioned, reaching out to disability groups that are specifically for your age group could be hugely helpful. When I first started losing my vision, I went to some meetings within the local blind community and honestly felt like I had nothing in common with the people there because I was the only young adult there. Everyone else was at least over 40. It's only when I found a group for younger people that I met folks that I really connected with and was able to open up.
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DHamlinMusic1 points1y ago
Ditto to all of this, not married but have a partner of near 12 years and we have a daughter together, also have so much less sight than you and can do all this.
34Emma0 points1y ago
Thanks a lot for sharing so openly! I tend to be exactly the same in my perspective on vi people, clearly seeing myself as part of the pathetic 95%. And I've got very similar shame issues as you, but with regard to my hearing impairment, which I've got on top of my complete blindness. I just feel like people like me honestly shouldn't even exist if we cannot force ourselves to focus/concentrate well enough to never, ever look like we've got issues. but what does help me is to stay aware of the parts of me which have plans and optimism, which do want to live and to work things out.
Have you tried psychotherapy after all, or is that cringe as well? I find it super helpful except I'm extremely picky on which kinds of therapy I like, most of them are bullshit in my not so humble opinion :P. Feel free to reach out if you want to talk to a non psychologist with the same issues!
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