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Blind and Visually Impaired Community

Full History - 2022 - 04 - 09 - ID#tznkma
30
lonely (self.Blind)
submitted by phasemorgsmom
I am 24, a partially blind person and I am extremely lonely. I am from India and people are not well versed in dealing with disabled people. People keep staring at me continuously when I'm carrying my stick, and that too I only know because they are standing close...way too close and staring continuously no matter how it comes off, I don't know how many people are staring at me from afar as I have trouble seeing that. This entire thing has made me very conscious whenever I am outside and made me lose all my social skills as half the time I am too focused on what people are thinking about me while I talk to someone. Apart from all this I have been lonely since Covid and have lost contact with a lot of my friends from before. I want to dig myself out of this hole and be social I am tired of being so lonely, I've always been lonely even before the vision loss and I am in a really bad position now mentally.

Would love to know how you guys manage issues like this and manage to stay social despite the vision issues. Could use some help.
Daise_X 7 points 1y ago
From reading your post, I think there are two things here. First is about your feelings of loneliness and the second is about dealing with other people's reactions to you in public.

With regards to feeling lonely, I note you said you lost contact with the friends you had before the pandemic. Do you feel you can reach out to them and rebuild those relationships? This, of course, depends on why you are no longer in contact with them. If you drifted apart, it may be worth a try to see if you can re-establish contact. Of course, use your judgement to determine if it's a good idea to reach out to those former friends and don't bring people back into your life who may have been toxic or harmful to you in any way.

Failing that, joining social groups around your interests could be a first step. I note that you mention "before the vision loss", are you newly visually impaired? If so, attending new places or participating in new activities may be tricky at first if you are just getting used to your new level of vision. You could perhaps start online, maybe find forums or online groups that you could be part of and then take those friendships offline and meet up in person once you're comfortable.

On to dealing with people's behaviour in public. I sympathise with your experience as, while I live somewhere else now, I am originally from a country where people had no qualms about openly staring at anyone who was different to them. For some reason, people seemed to think I was deaf as well as visually impaired and would loudly ask "does she even know where she is going?" when they saw me walking down the street. Then would react in total surprise when I answered back!

The only thing I can really offer is to ignore it. I know that's easier said than done but, if India is anything like where I am from, it will take a whole cultural shift to stop people behaving like that, which you aren't able to do as one person alone. Ignore it or maybe even have fun with it if you feel safe enough to, as another poster suggested, ask them what they're staring at and laugh at the shocked responses. It definitely gets easier as you get older.
phasemorgsmom [OP] 3 points 1y ago
Thankyou for such a thoughtfull respoonse...im so glad to receive all this feedback...im very greatfull

I wont say i am a newly blind person...i lost alot of my eyesight at 17 and im 24 now...its actually crazy how short that time feels...but odly long at the same time. Since i lost my vision i was never in contact with anyone with a similar condition as me...me and my family had never interracted with a blind person.
Me and my single mother were facing this all by ourselves and had no idea what to do to fix this. Evry single time me and my mom went to a new doctor for a check up they would tell me they can fiz it and it will take about 3 years. I tried so many...do so many different doctors but same promises expensive meds no results at all..and towards the end of all this, my nom had made me do some test and never told me what it was for...and hid the fact that she knew my condition was permenant. I dont feel bad about any of her dexissions but i just stoped going for new treatments after that...so thats why it still feels newv to me. But its been pretty long i guess

Thats a good idea, i would love to join some group just hope they dont give the "are you seeing this guy" look when i hold my phone too close to my face.

The staring thing i agree...im thinking i should ask them what they are looking at. Lol sounds fun...i think an even crazier thing i could do is once they start staring i could stare at them back
Full eye contact no blinking. Atleast ill be more conrident about that lol.

Thanks again
goldstarling 4 points 1y ago
Sorry you're feeling like this! Sorry I don't have an answer for you, but I had a quick glance through your post history and I can tell you that my bf is blind, with some sight and he worked full time up until yesterday!

He quit to start his own business, but he used to work as a teacher, then he freelanced doing accounting and basically any computer-based job he could find, and then he was a project manager.

Hoping you find some answers soon!
phasemorgsmom [OP] 5 points 1y ago
Thankyou so much for your reply...it is very inspiring to hear stories like these, makes me feel good about the journey i am on.

When it comes to the career thing...i think i have figured out a few things i can do...ive always been intrested in voice over and voice acting and have made a lot of progress in my vocal journey...im currently in the process of building a makeshift studio that can work for now till i can invest what i earn. Could be tough to get a whole career out of it but im also learning marketing so i can get a job in that field aswell.

Hope i can progress in both these fields. Im also learning alot about investing aswell. Hope all this works out
SpikeTheCookie 3 points 1y ago
I love that you're interested in voice over work, as well as marketing! I think this is your way out of loneliness, while working on your career as well.


Look for as many ways you as you can think of to connect with other people:
\* Find a couple voice-over and marketing online groups you can join, and really show up and participate with them. Become a presence and know for helping out others, offering encouragement, and providing responses.


* Read books on these topics and reach out to the authors, to say how much you like the books. See where the conversation goes.

* Consider starting a blog or youtube channel on one of these topics and interviewing interesting people (experts as well as other people just like you who are blind/vision impaired and pursing a career). You'll keep your own motivation high, plus meet wonderful people.

* Go out of your way to make connections on Linked In and post there about your experiences being Blind/Visually Impaired and also starting your career in voice over or marketing.

* Try to identify others who are blind/visually impaired and on the same career path, and start a group to support each other and hold each other accountable.


Unfortunately the antidote to being lonely is to take action, which is hard when you're feeling lonely. I totally get that. Take heart. I believe you can be in a totally different life by this time next year, as long as you harness a lot of grit now to keep taking steps.


And stay active here! We like you. :-D
phasemorgsmom [OP] 2 points 1y ago
Hey...thanks alot for such positive words...its really nice to talk to get such good feedback. I will try to follow through with the points you made. All the suggestions are really helpfull..thankyou so much

Yes i will try to be more active here this subreddit seems to have good people!
SpikeTheCookie 2 points 1y ago
So glad my answer was helpful. Can't wait to hear an update of which paths provide the most friends and happiness!
goldstarling 3 points 1y ago
That sounds fantastic! Best of luck with it all, sounds like you've got it figured out. 🙂
I'm not blind, but if you ever want to drop me a message, you are welcome to.
phasemorgsmom [OP] 1 points 1y ago
For sure!...thankyou i will do that
consummate_erection 4 points 1y ago
you know i bet if you asked them what they're staring at they'd be pretty surprised.

i'm sorry you're feeling so alone :(
phasemorgsmom [OP] 5 points 1y ago
Lol i have! They freak out a bit and then just move away a little hoping to not be in my visual range. But i honestly wish i couldnt see the way they look at me.
consummate_erection 1 points 1y ago
yeah i understand that. im fully sighted but i often put "blinders" on when i leave the house. just stare straight ahead and ignore the chaos around me while i listen to my music.

the best defense against a cruel world is a sense of humor and irony
TechnicalPragmatist 3 points 1y ago
Just don’t mind them and live your life normally.

I would say socialize with people and be out and about and make new friends.
phasemorgsmom [OP] 3 points 1y ago
So...ive been to the US and ive noticed that people are really polite and say hi even though they dont know you....and i love that. In India there is nothing like this tho...infact if i go say hi to someone they would think im a crazy person.

Maybe im just venting here but idk what to do in this situation.
TechnicalPragmatist 2 points 1y ago
Sure that sounds like a tough situation. How do you find friends usually?

I suppose that is true and untrue depending on the part of the US and the subcultures.


Maybe join a group or some sort of activity you’d like?
phasemorgsmom [OP] 1 points 1y ago
The only friends i have have been through high school and college


I am looking into groups...tryimg to find some place with a set of mix people
TechnicalPragmatist 2 points 1y ago
Hopefully you’ll find it.
NoClops 2 points 1y ago
I’m in America, and I don’t experience quite as much of the stigma as you from your country as a whole. I’ve noticed something super interesting recently. First a little background: I was born wiht a congenital condition that led to my blindness. By the time I was 3, my dad (same condition) was pretty much completely blind. In other words, my visual health was not a surprise to my parents. My mom is already infinitely anxious about the world, and I feel she was very protective, to the point of being detrimental, about my wellbeing. I am now 36. I moved out in my early 20s and have lived in a total of three states. I just moved back to my home state, and this is how I had a revelation.

My mom is sooo concerned about me that she asked why I walk the dog and not my husband. She saw me walking dog around new neighborhood and got nervous I was so close to a busy road, and she asked me why I can’t just take the dog around in the front yard. All this to say that my mom was watching me while I walke my dog. This is why I’m ALWAYS aware/self-conscious to some degree that people are watching me.

For the first ten years or so of being fully blind, I was ALWAYS (I just realized you may not be aware I’m typing some stuff in all caps, but then again you’re not completely blind, so maybe?) super self-conscious that everyone, everywhere was constantly observing me. This led to me being hyper anxious about my “performance” in public. I felt always on display, and I felt pressure to do things to the utmost, so people had the experience that blind people are in fact capable, competent beings.

Let me tell you: you absolutely do not need to hold onto that sort of pressure and responsibility. I still strugle sometimes, but I’ve adopted a “I don’t give a flying Eff if you see me stumble” mindset. I know it’s not easy, but it was so freeing once I could (mostly) stop worrying that people are staring at me.

As for the loneliness, I agree that online communities are wonderful. I made most of my current friends while at college, through various clubs and extracurriculars. I found school to be a great environment for me to come into myself as a blind person because of the support and structure of the institution. I wasn’t just out in the world.

Sorry for the essay. Hahah
wateeeva 2 points 1y ago
Hi, I'm from India too.. I'm sighted and I'm dating a visually impaired person and I know how difficult it is here because we aren't as inclusive and tolerant as we think we are.
Online communities really do provide strong support and you can make amazing friends too. If you live anywhere near the southern part of the country, pls do DM me.
phasemorgsmom [OP] 1 points 1y ago
Hey there...glad your partner found someone like you ...
Yeah...we are trying to be forward in alot of sectors but i feel like sometimes disabled people arent a part of the equasion. Especially when it comes to treating disabled people with respect. Ive been accused of faking my disability to get ahead in lines..and this has happend a bunch of times.
I live in mumbai so unfortunately not in the same region...but we can definately still conncet in dms.
WEugeneSmith 2 points 1y ago
You have gotten some really great responses so far. I especillay liked the concrete advice from Spike about becoming more active in an online voiceover community and using your skills to meet others.

Now, I am going to address the staring. I am many decades older than you, so take the for the grandmotherly advice that it is:

I have an autoimmune disorder (dx'd at the age you are now), and people have stared at me and asked rude/weird questions all my adult life. Four years ago, I had my right leg amputated and now wear a prosthetic. People stare. With my visual impairment, people stare or become impatient as I try to read signs (which door is the ladies room, and which is the men's?).

And here is my advice on that: For whatever reason that they stare - and there are many - none are about you. It is always about them. Ignore their stares. Take them in stride. Be proud of who you are.

As to being lonely, this will get better as you reach out to find your people. They are out there. Surround yourself with people who recognize your awesomness and who will lift you up. You are not alone.
phasemorgsmom [OP] 1 points 1y ago
Thankyou so much for such a good response...i really hope things go as well as you say. I am a conf8dent person and usually nothing can break me but we all have bad days and if random peoole judge your presence then that feels pretty bad. I hope things go well and feel normal as my doctor says my condition is permenant.

Thankyou agqin for sharing your story i hope you are doing well and have great people around you too.
Take care
Rimond14 1 points 1y ago
Hey, I am also an India and as far as I understand India is a shit country for disable people. I have corneal opacity (basically scarred cornea/left eye, right eye is fine) . I can still see with my left but the vision is blurry and I have cloudy shape in front of my left cornea. I lost significant vision when I was in 6th standard and after 6 month of treatment the scar healed(not completely) but around December of last the scar started growing again (I don't know why) and in the span of week it completely blocked my front part of cornea.I visited an eye specialist and he gave me tropical steroids,but it didn't work and I lost most of my vision in my left eye and after that I visited another doctor without any results. I live significant part of my life at home mostly reading and thinking because of my illness. I understand your situation,not just for disabled people India is terrible country for everybody because there no road for walking and the footpaths are mostly occupaied by food stalls.I have seen many accidents in my front of my eye and no body gives a shit about people like you and me. And India is the most racist country jn the world more racist than US. But hey, we have to live our life as much as we can(you can DM me me anytime).

And I think you can start a YouTube channel(Like reading books.I know a few people who make audio stories and they have a large number of subscribers (around 350k ). They translate English author's in Bengali(I am Bengali) and they narrate it sound effects(but most of it belong to horror genre and mythological horror). I think you can do something like this.
Littlebiggran 1 points 1y ago
In India, everyone stares. Do they ever ask you questions??
phasemorgsmom [OP] 1 points 1y ago
Yea some people do...and i think its better than just staring
Littlebiggran 2 points 1y ago
I know there are several blind people on FB from India. I will msg their names to you.
phasemorgsmom [OP] 2 points 1y ago
Okay amazing really appretiate this thanks alot
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