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Blind and Visually Impaired Community

Full History - 2022 - 04 - 15 - ID#u4du4n
57
WAY less blind than a month ago. Feeling weird about it. (self.Blind)
submitted by NeuroticNomad
For most of 2020 and 2021, the vision in my left eye was going down quickly. The cornea transplant was a failure, and a second surgery was risky. By January of 2022, I could detect light out of my left eye, but not much more.

During this time, my right eye's vision was going, albeit much more slowly. Glaucoma had taken a lot of my peripheral vision over the years, and every six months we charted how much smaller my vision field was. A year ago I was told my cataract was bad and was going to keep getting worse, but the left eye was a bigger priority, so it was a very stressful race.

By the time my left eye was useless, my right eye had a very small circle of very blurry vision (which could not be corrected any better than 20/100) so it required lots of magnification to read anything.

It wasn't much, but I was used to it. $1

Finally, I was able to schedule a cornea transplant for the left eye. That was a couple of weeks ago. Now I can see well enough out of it to tell time and can even read very large print on TV. It's so weird.

Weirder still -- it turns out the right eye was the way it was because of an inflamed retina. After a few weeks of a ton of steroids, not only is it way less blurry, but my vision field is much larger.

I went outside last night, and could SEE, even though the sun was down. $1 because I kew I was going to regain some vision, but this is more than I could have hoped for and way more than any of my doctors expected.

I know it's still touch and go with the transplant -- and that the right eye still has a cataract --- but I feel like I won some sort of unexpected lottery and don't quite know what to do with myself.

TLDR: In 3 weeks I went form 5% vision in one eye to 50+% in both.

UPDATE: Thanks everyone for all the positive messages. I was honestly really scared to type this.

Four of the last five years have been a slow and steady decline in vision, and the last 12-18 months has been scarily quick vision loss; so the amount of improvement over the last 10 days has been astonishing.

Add to that the discovery of the cause/solution to the vision problems in the OTHER eye, in the same month!! Sudden vision improvement in both eyes happening at the same time just seems unreal. If this was happening in a tv show, I would yell at the screen and call the writers lazy and stupid.

​
MostlyBlindGamer 18 points 1y ago
That's fantastic! Prepare for the worst but hope for the best, right? Make sure you enjoy this while you can and if it turns out it stays just as good or keeps getting better, just keep enjoying it.
TechnicalPragmatist 9 points 1y ago
Nice congratulations enjoy it and don’t take it for granted now you know what it is without.

Many people take their vision for granted.
trxybus 6 points 1y ago
Absolutely incredible!! Reading this fills me with so much hope for our blind and visually impaired community. Progress is happening! Thank you for sharing this aspect of your journey. 🌻
carolineecouture 4 points 1y ago
Congratulations! I'm glad things have improved. I wouldn't feel like an imposter because you are still dealing with vision issues and loss. You've just gotten some vision back. Our brains are wonderful and soon this will be your "new normal."
SpikeTheCookie 3 points 1y ago
WOW!!! What an exciting time for you. I'm absolutely thrilled that you're seeing so much.

And it's spring! Go on walks. See the world. Enjoy seeing facial expressions and non-verbal cues. And embrace colors. Whatever makes you happy. We're throwing confetti your way and celebrating with you!
Dry_Director_5320 3 points 1y ago
So happy for you!
SpektrumKid 2 points 1y ago
Get that cataract fixed, and you'll be back even higher.
QuentinJamesP89 2 points 1y ago
Yeah, I just had cataract surgery on my only good eye and it's made a world of difference. I hadn't had high hopes, and was honestly nervous about another surgery on my only eye with vision, but it's been a marked improvement.
fhifck 1 points 1y ago
Hey OP! Congrats on some vision restoration! You’re still in this community (if you want to be). Most of us are on the spectrum from low vision to NLP with far more people having complicated and non static issues like you described than no light perception
GreenSloth1 1 points 1y ago
Congratulations!!!!!
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