I've tried explaining what I see to my vision rehab dr and he tells me it's CBS. However, I don't see hallucinations. I just see random color and black spots in my good eye and waves of light in bad eye (I tend to believe it's the retina making momentary contact). So, I'm not sure how what I see qualifies as CBS.

Night time is kind of different, though. I'll be lying in bed with my eyes closed and I swear, sometimes I can see outlines of objects around my room. But everything is so faint, I'm not 100% certain.

So, I don't know if I have CBS or not.

In my personal experience of 8 years of total blindness the hallucinations never go away. I began experiencing visual hallucinations of the world around me while my vision dimmed and lost contrast perception which were crisp at the time but eventually became fuzzy blobs of color when I lost all my useful vision. I don't think this is a bad thing though, as I prefer to have my brain fill the void with images if the alternative is seeing pitch black all the time, but I do understand that for those who experience disturbing hallucinations it must be somewhat disconcerting.

It's been three years since my initial vision loss. Right after I had surgery I went completely blind for about four months. That was the craziest in terms of quality and consistency of my hallucinations. I'm talking non stop full blown animals, cartoons, lights, flashing words, sparkles, etc.

I regained some of my vision and now I have a green and red line running across the middle of my vision with basically what I would describe as tv snow static all the time. Even when I close my eyes.

​

The only thing I can tell you is that you'll probably get used to it and hardly notice it over time.

​

Edit: Actually it's been three years.

I've gotten in depth on Charles Bonnet Syndrome $1.

I sometimes get this if I focus in on it or sometimes get lights that move around. I’ve been totally blind for 20 years now. I don’t see random things often but can definitely sometimes. And occasionally it’s like see see the object. Sometimes at night I have dancing flashes of lights in colors I’ve not seen colors in many years and light for a few but yeah.there’s no light and sometimes I think I see light even when there’s none. I don’t tell this to many but thought I’d chime in. It’s definitely fascinating to me but it doesn’t bother me much. The lights moving is interesting to think about when in bed hahaha!

Thank you all for your kind words! My doctor reassured me too and said it is just my brain trying to be involved in the act of seeing. My visuals are mostly blue wave forms. But also I think sometimes my eyes play tricks on me with respect to depth etc. glad to know I’m not alone. this forum has been so great, thank you all

[deleted]