I was at the opticians for visual complaints and it was determined that I have lost part of my visual field in both eyes. I have joined the waiting list to see an ophthalmologist at the hospital.
I have ataxia which affects my mobility, but my healthcare team have leads for a diagnosis of a neuro degenerative disease, considering the patterns of deterioration in the last 18 months. That deterioration includes sight. I’m conscious that my sight may not improve and may, in fact, get worse.
What accommodations have people made if they have become partially sighted to make their lives safer and easier? Ocular problems are new to me.
TechnicalPragmatist5 points1y ago
Get help now. Get some mobility training, start to use a cane, get ils or independent living skills training, learn to do things blind folded, and learn braille and assistive tech, at least assistive tech if not braille.
courage5068 [OP]1 points1y ago
Thank you for this
TechnicalPragmatist3 points1y ago
No problem. Do you currently work or go to school? What do you do. If possible learn to adapt this. If you can tell me maybe I can give you a pointer or tell you well that’s going to be tough can’t do that.
One person I met on here was in the printing press business. I was like welp yeah, can’t do that as a blind person another person was a oil rig inspector. And it’s like probably not that either, but for most people you can adapt it especially office jobs and many other things.
courage5068 [OP]2 points1y ago
I was teaching, but had to leave my job in November because of my health. It’s continued to deteriorate ever since. I have operations and hospital treatment regularly. I have carers who support me at home. I can’t walk really, and am getting a wheelchair soon. I use a walking frame to walk and am accompanied.
I watch TV, I’ve taken up writing a bit- I type on a word processor. I read a little. I also have upper body control and strength at the moment so do things around the house from a seated position. I also manage my personal affairs (such as mail) and those of my mother, as she is not able to manage them entirely herself.
TechnicalPragmatist3 points1y ago
Sorry to hear of that. Even as a blind person you can go back to teaching, you would just need to adapt, learn to use assistive tech and use it along with other methods, that is if you get better in terms of general health. What I am saying is vision shouldn’t make you not be able to do that job. You can teach as a blind person. Very well too.
You can learn to read with audio or text to speech and if you’re really up for the challenge braille.
With mail maybe at some point if you lose more vision try ocr or optical character recognition.
And audio description may help also when you lose more vision.
Mamamagpie3 points1y ago
I have right homogeneous Hemianopsia. Which means I’ve lost the right half of my visual field in both eyes.
I have move my eyes more to see a line of text in a book. I use and index card when I read to not lose the line. I didn’t use a cane for decades, and wish I had, it would likely have spared me several sprained ankles.
courage5068 [OP]2 points1y ago
Thank you!
Amazing_Ad73861 points1y ago
Make sure to check out The Blind Life ($1) on Youtube. He does great reviews on many devices for people with a limited field of view, I think.
courage5068 [OP]1 points1y ago
Thank you!
SoapyRiley1 points1y ago
I have glaucoma and symptoms of visual snow syndrome which makes it where I have to look up to see where I’m going and takes me extra time to make out what I’m looking at. I started using a cane to travel, screen readers on my devices and learning braille so that I’m not straining my eyes all the time. It’s made a huge difference in my quality of life by cutting down on eye pain. For the kitchen I got a cut resistant glove.
courage5068 [OP]1 points1y ago
Thanks for your thoughts. Glad it’s made a big difference to your life!
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