Bring your karma
Join the waitlist today
HUMBLECAT.ORG

Blind and Visually Impaired Community

Full History - 2022 - 05 - 08 - ID#uku0kd
1
Those who have that 24/7 circadian rhythm sleep disorder, what has worked for you, and what's it like? (self.Blind)
submitted by Raccoon_Tail33
I don't, but I know someone who's completely blind and thinks she does. She would randomly doze off, sometimes multiple times. I'm just asking out of curiosity.
B_Bussen 4 points 1y ago
When I was dozing off like that, I did a sleep study and found out I had sleep apnia which is much more serious than anot sleeping.
Raccoon_Tail33 [OP] 3 points 1y ago
When I was at a vocational center and wore those sleep shades, I'd sometimes randomly doze off, so I can't imagine what it's like for someone without vision or light perception.
codeplaysleep 2 points 1y ago
It's probably best to consult a doctor to rule out other sleep issues first. Sleep apnea can be serious, so should be ruled out, even blood sugar and blood pressure problems can make you super tired. My sleep issues went away after I got on an antidepressant.
TechnicalPragmatist 2 points 1y ago
I may and sometimes my day can be 36 or 40 some hours. And I sleep at all times of the day. But yeah. I don’t know if I have it or something else.
Central_Control 1 points 1y ago
I have experience working with non-24 disorder. It usually causes people to live a 24.5to 25.5 hour day. Every day. So their sleep schedule would be like:
Wake Sleep
7am 11pm
7:30am 11:30pm
8:30am 12:30am
10 am 1:30am
10:15am 1:45am

It keeps going later and later every single day until you go around the clock and start over again. I've seen cycles take 1 to 2 months for the entire 'around the clock' sleep schedule.

We tried melatonin, and a few other sleep aides like benadryl. Nothing like Ambien. Hetlioz came along and that worked perfectly. It completely resets the non-24 cycle to a 24-hour cycle. Just take one before bed and it does help you get tired and rest. I wouldn't recommend if you're using heavy equipment or driving while on Hetlioz, but other than that the side effects seem to be minimal. (I am not a doctor, this is not professional medical advice. This may not be typical). It just makes you tired like it's time to go to bed.

Obviously, it has to be used with an exact schedule. You take your meds and go to bed and it has to be at the same time every night. You can't have a regular sleep schedule if you don't take your meds/go to bed at the same time everyday.

Odds are you're going to have to apply for a grant from the pharmaceutical company with the help of you doctor, as this is NOT a cheap medication and can only be ordered at specialty pharmacies. They could cover all costs depending on income.

I am not familiar with any other medications in this class of medications, nor am I affiliated with any doctor's office, pharmaceutical company, insurance company, or anything of the sort.
This nonprofit website is run by volunteers.
Please contribute if you can. Thank you!
Our mission is to provide everyone with access to large-
scale community websites for the good of humanity.
Without ads, without tracking, without greed.
©2023 HumbleCat Inc   •   HumbleCat is a 501(c)3 nonprofit based in Michigan, USA.