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Blind and Visually Impaired Community

Full History - 2022 - 05 - 16 - ID#ur7v67
15
Is cosleeping common with visually impaired kids? (self.Blind)
submitted by geegaw
I have a 6 y.o son who was diagnosed in January with severe early childhood onset retinal dystrophy. He has poor closeup vision and struggles with dark and low contrast environments. He also has a very hard time spending the entire night in his own bed, in spite of numerous different experiments with nightlights, touch-actuated bedside lights, etc. Even if he falls asleep in his bed at 8 or so, he will be in our bed by 11:30 PM, and even attempts to move him while sleeping might only keep him in his bed for an hour tops before he wanders back. If he starts his evening sleeping in his older sister's large bed, he'll likely sleep there all night. Being alone in his bed seems to be the big stumbling block.

It's hard for me to know how much of this is due to his visual impairment versus just standard childhood desire to sleep in his parents' bed. For those parents of visually impaired children, have you dealt with similar cosleeping issues? How did you help get them more comfortable sleeping all night in their own beds?

I have many other questions to ask this community about my son's journey ahead, but felt this was an easy topic to start with.
TechnicalPragmatist 15 points 1y ago
Not blindness related at all. Just a childhood thing.



What other questions do you have?
Mister-c2020 13 points 1y ago
Honestly, this was me when I was younger. I was very scared of being left alone because I wouldn’t sense danger near me. Sleeping with someone always made me feel protected and safe if something came out of the dark. It took me till I was 13 years old to finally be able to sleep on my own. I’m not sure how common this is but I definitely experienced it. Perhaps try some thing that might make him feel better at night, maybe a stuffed animal or some pillows around him. That really helped me a lot when I was younger.
BikerRaptor 5 points 1y ago
Childhood thing. Almost all kids get through this. Didn't you?
niamhweking 3 points 1y ago
My vi daughter hates being alone full stop. Not sure if it's the vi or the autism/aspergers.

I know the dark and optical illusions really freak her out to. I think it is partly vi related because she can't just see that there is someone else in the room from afar, I think the Co sleeping and knowing someone is there is a big mental help to her. Our solution was teddies, she adores them to her they are "real" so she does have company at night.

She's 10. If it's not bothering you I wouldn't worry about it, as in if you are fine with Co sleeping or him and his sister Co sleeping.
r_1235 1 points 1y ago
Yup, I still have a bit of sight, but, in dark, it's completely black. I hate to be alone in dark, and in childhood was scared of being alone in dark.

See if your children would be okay with some defused light in their bedrooms at nights. May be, the scylence also causes some feer. Play some soft radio or something in background during the night then. Sound around me, be it a motor running, car, machine, people talking, I can sleep with way more eas in those environments.
pyre2000 1 points 1y ago
My kids (no visual impairment) did the same thing.

They both made it to their beds and stayed there somewhere between 9 and 11. Sounds normal.

Enjoy it while you can.
Wolfocorn20 1 points 1y ago
Never actually did that with my parents but my brother and i used to sneak in to eachother's rooms at night. I've bean vi for my whole life and my brother lost an eye at age 5 we did it befor and continiued after that happend.
No idea if that was just us being kids or something els.

Gotta say tho my mom alway's made sure i had atleast 1 stuffed animal with me wherever i whent to spend the night and that really helped me a lot.
I still sleep with one and for some reason it always gives me confort.
So maybe that might help for your sun aswel
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