Blind life style and blind identity and love it?(self.Blind)
submitted by TechnicalPragmatist
Who else is in to the blind style the blind life? A lot of people keep talking about restoring vision. Anyone love being blind, totally not ashamed and love it. It’s like an baked in in built part of them and would never get vision again?
Anyone else want to share their love for it?
Who loves being blind and being the one with the cane and tapping around town, chilling out and just finding your way around. Or being the one going around town and using your screen reader or your voice over on your phone, just the gal/guy with the talking phone and talking tech? The one carrying around braille books and braillers or whatever.
Just wondering.
gunfart18 points1y ago
nope. i miss my sight. i miss driving a vehicle, i miss seeing people's different faces, i miss seeing my own face, and most importantly i miss the safety of being able to see what's in front of me and what i'm approaching.
i guess it's a bit different when you're only recently experienced vision loss. i don't complain much because it won't fix anything, so i just roll with whatever is happening anyway.
oldfogey123455 points1y ago
Vision loss feels like falling out of an airplane doesn't it?
Sooner or later you just look for people like op. He just cheers you up
gunfart8 points1y ago
i mean, i can't sit here and say being without sight is amazing and the best thing ever, especially since i've lived both worlds and know what i'm missing out on. but then again, i know that i kinda did this to myself and didn't properly take care of my eyes like i should have and i'm living with the consequences of those actions and i'm making the best that i can out of it. sure it kinda sucks sometimes, but i will admit that losing my sight has opened a whole lot of other doors and i wouldn't want to lose those experiences because it's certainly helped in shaping me into the person i am now.
but yeah, i kinda do miss looking at things like pictures, colors, flowers, boobs, and seeing how old my friends and family have gotten. it is what it is.
SLJ71 points1y ago
This is very well-put and I think people will resonate with it. There's a difference between wanting sight back for functional reasons and just wanting to see familiar things again. I've never known what anything looks like—not even light. I do like the idea of having another sense for practical reasons, and to see if vision is everything it's cracked up to be. But I also wouldn't be where I am now without it.
TechnicalPragmatist [OP]4 points1y ago
I think this is a totals from birth or younger or blind for a long time thing and usually since very young.
DrillInstructorJan15 points1y ago
I have no idea why anyone would be ashamed, but I also have no idea how anyone would love it.
In my experience the people who happily claim to love it and that it's part of their identity have never had good sight and often don't know what they're missing. I have nothing but respect for anyone dealing with a lack of sight but I think people in that situation should reserve comment, especially since everyone must be aware of what sight lets people do. I don't think I'm ever going to be able to pretend that I enjoy lacking that stuff. Now I don't go around every day in a state of total misery but I'm not going to say I wouldn't love to fly on a jet pack if I could, especially as jet packs now actually exist!
What I will say is that I work very hard to make it not be a big part of my identity. I'd rather have my identity be my choice rather than have the world impose something on me. I used to have a job for a big corporation and when a questionnaire came around with a question about how many disabled people were on our team, all but one of my colleagues said none. When later someone said what about Jan, everyone went, oh well sure okay but she's not disabled disabled. You can get political about what people really mean by disabled in that sort of context but it was the best day of my life to that point.
TechnicalPragmatist [OP]0 points1y ago
Sure but what if it is more about viewing it as differently abled or having a reality a bit different. In a sense.
DrillInstructorJan8 points1y ago
You can call it what you like, but in the end I'm not going to pretend that there is not a bunch of stuff I would like to be able to do and can't.
You must be aware of what people with good sight can do with it, and I don't think anyone can realistically say that none of that is useful or anything they'd value.
That reality does not devalue anyone, nor does it make anyone's life miserable, but I think it is a reality that is worth facing up to.
TechnicalPragmatist [OP]4 points1y ago
I don’t care what they can or can’t do with it it’s like a different lifestyle. I don’t care what surfer dudes who have good balance can do with it who win medals for their stuff. That’s really cool. But it’s a different reality and gifting in a sense. A different world. Can they read in the dark? We can. When lights out who’s the experts?
I think learning to respect the different point of view would be cool too.
Fridux6 points1y ago
Disclaimer: I'm not your parent commenter, but she has a point.
> I don’t care what they can or can’t do with it it’s like a different lifestyle. I don’t care what surfer dudes who have good balance can do with it who win medals for their stuff. That’s really cool. But it’s a different reality and gifting in a sense. A different world. Can they read in the dark? We can. When lights out who’s the experts?
You do realize that the sighted can do everything we can, right? If our skills were worth anything they'd sure invest time into learning them. The opposite, however, is not possible; I'll probably never be able to read print again, for example, and that's a lot more useful than being able to read in the dark.
Mamamagpie10 points1y ago
For 36 years I passed as sighted going around without a cane and being able to ask for accommodations a bit on the down low.
This past August I broke the ankle on my blind side and realized I’ve had several injuries tripping on things on my blind side.
I got my cane and love it. I like interacting with people. I do notice how many people while giving directions out habit use non-verbal signals like pointing. I have hemianopsia so I often see this, but I do suggest that pointing isn’t useful for many people using a white cane.
TechnicalPragmatist [OP]2 points1y ago
Good I am glad haha! Hang around the blind communities especially the totals and maybe you’ll get the culture, some of it is a bunch of drama though. For some reason. Some of us stay in the fringes but yeah.
Mamamagpie4 points1y ago
In the 80s I went to blind college prep. Spent the summer with other VIP on college campus, going to classes, living in dorms. All while still in high school. It was program devised by our state commission for the blind and vi.
TechnicalPragmatist [OP]2 points1y ago
That’s pretty cool yeah, sometimes that’s a cool experience.
RapperNev8 points1y ago
I'm just trying to live. No disrespect, but I got over the peppy, false-positive shit a long time ago. Everybody's gotta play the cards their dealt, its not something I constantly think about. But would I change it if I could? Fuck yeah. Although hearing loss restoration comes first on my list of priorities, personally. There's just so much more to life than "wooooooo I have a disability y'all, I'm just like yoooou!" We all gotta make our way in a sighted world, its not a blind world, and I just don't think being so wrapped around BLINDBLINDBLIND is the way to do that, for me anyway. I was lucky to have competent instructors around where I was when I was young, so I didn't have to go to a school for the blind. I get why some people may do that, I'm not saying nobody should do that. But idk, its an identity thing.
TechnicalPragmatist [OP]1 points1y ago
True definitely an identity thing either way.
codeplaysleep8 points1y ago
I don't know that love is the right word, but I don't dislike it any. I'm comfortable with my vision loss and it's part of who I am, and I generally like who I am. I don't think I would change it if I could at this point.
I started using a cane a few years ago, when I got to the point where I'd aged out of being able to easily tolerate sprained ankles and falls. At first, I was self-conscious, but now I enjoy the confidence and security it gives me.
TechnicalPragmatist [OP]1 points1y ago
I see.
CosmicBunny977 points1y ago
Honestly, yeah, I do like being blind (for the most part). For me, it'a sense of stability and it's better than the light sensitivity, needing to magnify everything etc (not to downplay low vision people). I just miss being able to do things like shop completely independently or look at images for story covers, things like that.
TechnicalPragmatist [OP]2 points1y ago
Yeah, that makes sense. Well we can definitely do those things a different ways. It’s nice shopping with an assistant sometimes sometimes it’s nice to chat with someone while shopping.
CosmicBunny972 points1y ago
That’s true :) I don’t mind shopping with a support worker or my parents, but I definitely miss exploring the city by myself.
TechnicalPragmatist [OP]0 points1y ago
You can definitely do this as well. I love it and did it all the time, maybe you should try.
CosmicBunny971 points1y ago
That’s cool. How did you go about doing it?
blackberrybunny6 points1y ago
I missed out on driving, my entire life. My mom finally bought me a ride when I was 48--a gas powered Yamaha golf cart. We have 5 clear acres. I zip around with my beagle like crazy. LOVE it. But I always wished, and it's been my biggest lament of my lifetime, that I should drive...... Everything else? No problem!
TechnicalPragmatist [OP]2 points1y ago
That’s pretty cool about the driving I did a little when I had very poor site when I was a kid. It was interesting I guess. I remember it a little it was a kids version of like a golf cart I guess.
But yeah, don’t miss it though but yeah.
ppegp051 points1y ago
I was born blind, got some back (low, low vision levels) and am now going blind due to age / eye damage. First, sorry some people had to smack you around verbally, no reason for it. I agree with everything that's been said here, am I Mary Sunshine that I'm blind. No. Does it differentiate me, sure. (People talking to someone else and ignoring you standing there, you know "cane magic".) I'd love to drive, I'd love to pilot my own plane but at the same time my vision has made me who I am and it's been a pretty good ride.
There are as many perspectives as there are flavors of people, stay with your positive outlook it helps when you fall into a storm water drain while dressed to the hilt boarding mass transportation. What can you do? The driver (who I rode with a lot) started laughing, some of the ladies who take the same route started laughing and I had to admit, standing there in all my dripping finery did start to make me laugh. The ladies helped me straighten myself up, a bottle of gin appeared and was shared. When I stepped off at my stop at home, I wasn't thinking about my situation as blindness, I was thinking about how lucky I am to have those people in m life.
Sometimes you do have to watch out that blindness doesn't cause you to make decisions clouded by your blindness. I was at a national convention for blind people, a little girl, maybe 4 who was a total was walking along independently singing and dancing along with her cane. I asked my wife "If she was behaving like a jerk, after all she represents all of us blind here!" Her reply was: "Put it to rest hot dog, she's behaving just like a happy little girl should. She just happens to be lucky enough to always have her little white dance partner with her. Cute as hell really..."
I'm new to Reddit and have never posted, so I hope wasn't too long for the forum.
blackberrybunny1 points1y ago
Such great stories here! Thank you for making me smile today!
[deleted]1 points1y ago
Yeah, your reply is fine, depends on the person, I write longer replies for sure, or can. Welcome to reddit.
Interesting answer. Love the part about the little girl hahaha!
Unlikely-Database-276 points1y ago
Yeah, I have no problem with being blind. It is what it is. I try not to make it my whole personality either lol its just how I am. I use talking crap and tap loudly when walking. Thats life. I try to make jokes about it too and not making it a big deal, makes it easier to fit in so to speak. If its not a problem for me others won't see it as a problem. I have no interest in gaining site, personally. Yeah sure it would be helpful in some ways but everyones got problems, blind or not.
TechnicalPragmatist [OP]3 points1y ago
Yeah, definitely agree with you. Yeah, I don’t know how much it’s an identity but definitely more of one than some people. Someone else was talking about being part of the blind teen groups and I was like yep! Remember that and sometimes I am part of the blindy groups but I stay on the fringes these days.
Unlikely-Database-272 points1y ago
I have a few blind friends. We hang out. But blindness hardly comes up. We don't hang out and talk about screen reader voices or other shit like that. We help each other out if one needs it but other than that were just friends cause we like the same things. As any friends would be. We just happen to be blind.
TechnicalPragmatist [OP]3 points1y ago
I don’t know if I always do but it comes up. Especially tech people. If we talk about our lives it comes up.
But interesting.
letspaintthesky6 points1y ago
I don't know that I always feel so positive about it, but at least, for my left eye (it's always been the more blind eye) I wouldn't change it.
The other day, when my cane got nike swooshed by a shopping trolley, I realised it would have been so easy to say 'being vision impaired sucks' but the real problem was the attitude of that lady.
I'd say on a scale of 'being VI sucks" (1) to this kind of positivity (10) I'm about a 7.
TechnicalPragmatist [OP]1 points1y ago
Haha! Interesting I definitely think it’s more of a blind from birth or a really young age thing.
letspaintthesky2 points1y ago
I don't remember ever having full sight, and they were never able to ascertain if I ever did. Could be a part of it
TechnicalPragmatist [OP]1 points1y ago
I see and for sure.
EffectiveYak03 points1y ago
No. If I could restore my vision I'd do it in a heartbeat.
In fact, I don't want my disability to be part of my identity. It's just something that changes the way I do things. I don't want people to think of me as the disabled guy.
TechnicalPragmatist [OP]1 points1y ago
I see…
Ok-Communication21953 points1y ago
For me it feels like since I still have relatively good vision I have all the negatives but don't really get to experience the nice aspects of it. Most people don't even realize that I have a visual impairment, yet I can't recognise any faces and I always worry to come of as rude if I don't recognise someone in public, I am also really bad at names because of it :/ Maybe it's different if you are legally blind and use a cane so people are more aware of your impairment. Also most likely it's different if you lost your vision at an early age compared to slowly losing it as an adult.
I am completely fine with it now and its just a part of me, I don't mind it much in day to day life it's just something to be aware of when making decisions about the future like career choices or where to live. But if there is going to be a form of treatment in the next decade I would definetly give it a chance
TechnicalPragmatist [OP]1 points1y ago
That makes sense for sure I do think it’s more of a thing for people who was born blind or lost their vision at a young age or who had really terrible vision to begin with.
Criptedinyourcloset3 points1y ago
Yes totally. I’m a blind teenager and I’m totally into blind nerd culture, spend a lot of time on blind Twitter, no pretty much everybody in the blind teenage community around the US that’s pretty active. And honestly, it’s just a part of me now. Like, I don’t think most cited people are going to get our love for TTS movies and crap like the evil Samantha series. It’s just not something they pay attention to you were Billy know about. We have a lot of little niche interests like that. I like it.
TechnicalPragmatist [OP]1 points1y ago
Haha! There’s such a thing have you heard of jaws is a murderer? I don’t know if it’s appropriate for teenagers though.
I got in to stuff like that a little was in a blind circle when I was a teen and didn’t have anywhere to go or anything to do. Long story honestly and got in to all that I know quite a few people well. Haven’t talked to them in ages but yeah. Interesting twitter is the main thing. We all hung out on skype for a while teamtalk was the newest coolist thing. I guess twitter is for teens. If clubhouse was I guess it would be that. Hahaha! I remember all the skype parties for sure.
Criptedinyourcloset1 points1y ago
Oh yeah, funny you mention to Josh for windows is a murderer because me and my other friends just re-watched it this weekend. And no, it’s definitely not appropriate for teenagers but none of us really care. Clubhouse is the huge new thing with blind teenagers though still. All of our crap used to be on this app called Dabble and tell the developer made some really stupid decisions and screwed the whole thing up. One of my best friends made the evil Samantha series. You should check it out. Just look up evil Samantha TTS video.
TechnicalPragmatist [OP]1 points1y ago
I know the guy enough who made that. Hes an interesting character hahaha!
That’s pretty cool hahaha! Yeah. I know about debel it’s not free then there’s vorail. Which I am on. I am on clubhouse but haven’t gone on in a long time. I went on the other day changed some stuff but haven’t really seriously been on.
Haha! I see that’s interesting. I guess people like it now hahahaha!
Criptedinyourcloset1 points1y ago
I know right? A few of my friends were able to meet him a few years ago and he is very interesting. But hey, he made one of the best TTS movies on YouTube so I’m not complaining.
ChipsAhoiMcCoy2 points1y ago
Pretty sure your post is referencing a post I made in the past so I will illustrate my point again here you’re talking about being recreationally blind basically saying that if there was a cure you wouldn’t take it and you would choose to live the blind lifestyle you claim it’s a majority but I can tell you right now while there is a part of the community who feels that way, you will learn that it is certainly not the majority I think a lot of people would choose to get their vision back if they had a choice or at least try it out and see how they would feel afterwards that’s not to discredit people who do choose to stay blind but you going around saying that everyone is offending you and being mean and rude by saying they would take the cure is ridiculous quite frankly What you will find is a lot of people in the community who have excepted the fact that they are blind and learn to live with it what you will not find is a lot of people saying they absolutely love being blind I would never want to go back to being cited what you’re talking about which is being recreationally blind has made it a news headlines before for example there was a story where a girl had their doctor pour some kind of bleach or chemicals in her eyes to make herself blind and that made headlines because people thought she was insane not only did people think she was insane, but people found it very offensive who were in the blind community because this woman had perfect eyes which a lot of us here would love to have, and she literally threw them in the garbage can to be blind that’s the person who you are most similarly in the same viewpoint with and I don’t think a lot of us share that you shouldn’t be trying to discredit other peoples opinions none of us are discrediting your opinion but you seem to be going into peoples comments in their threads and being generally a nuisance
pisces03871 points1y ago
/u/ChipsAhoiMcCoy I remember watching an episode of Dr Phil, where that lady was on, the one who wanted to be blind so much that she found this non licensed psychologist weirdo to put the bleach or whatever it was in her eyes.... I 10000% and** this is as someone born blind** find it absolutely unspeakably offensive. I would be sympathetic and empathetic, + help any way I could whatsoever, anyone going, or just recently gone blind, or loosing vision, I mean it must be so traumatic, but that lady if I ever came across her I can tell you I would have a few choice words for her. And going around blind simming before it happened????? How absolutely dare you!!!!! That's an insult to those of us who live this way every day through no choice or fault of our own. Do I have a problem with being blind? Most of the time I don't, do I love it? no I don't, but don't know that I would take my sight if it was offered, but I do not love having to use a cane to get around everywhere, I do not love that I can't work in so many jobs just because I can't see. I am very grateful for, and appreciative of, the tech that allows me, to some extent participate in society along with my sighted piers, but I do not love being blind sorry to burst your bubble.... also, everything after the dr phil reference, was directed toward the OP and not /u/ChipsAhoiMcCoy
ChipsAhoiMcCoy2 points1y ago
Thank you, this makes me feel so vindicated to know that someone else feels the same way I think excepting the blindness is one thing, but loving it and saying you wouldn’t ever want to go back without knowing what it’s actually like to have vision feels just wrong to me you know? It would be one thing if there was a way for someone to try having full vision and they then decide they don’t like it but how can you know you don’t like something if you haven’t had the chance to experience it you know what I mean? That was ultimately the point I was trying to get across with my old post in this, thank you for commenting though, it feels good knowing someone else feels the same way
TechnicalPragmatist [OP]1 points1y ago
So if you learn to read and respect you’ll find out I mean the totally blind community and most of us who were born blind or was totally blind from a young age so let’s not create drama now.
jessiexramone2 points1y ago
i will never have any reversal of my blindness. while i used to hate it i’m nearly 38 now, it’s one of my very best friends now
TechnicalPragmatist [OP]1 points1y ago
I love that is really neat and good at least you do find contentment.
Wulflord1042 points1y ago
Honestly a good question
TechnicalPragmatist [OP]2 points1y ago
Well thanks glad you think it’s a good question. I saw all sorts of things contrary and it’s like yeah, who else. I can kind of relate to the bat cave article posted a while back but yeah…. Definitely pretty comfortable being blind.
ChipsAhoiMcCoy1 points1y ago
You’re making a lot of assumptions here first off I was born with LCA and I had very very very poor little to no vision when I was born so I’m included in this community you’re referring to and also you’re assuming the majority of people who follow this sub Reddit are fully blind there are plenty of people here who are considered legally blind or just partially blind I’m not sure what you’re trying to get out by saying let’s not create drama you literally created a post after I made mine so who is the one starting drama here exactly? Also I would like to point out that in the description of the sub Reddit it literally says that people who are friends of blind people or family members can post here as well so I don’t really understand your point here
meganbernadette1 points1y ago
Chiming in to say I love your attitude. As a mom of a toddler with Peters Anomaly it’s been one hell of a rollercoaster already with the surgeries and constant fear of vision loss and glaucoma progression. Appreciative of the vision that she has now but knowing she can lose it at any time.
TechnicalPragmatist [OP]3 points1y ago
That was my parents for sure. So I can kind of relate. I’ve had like 8 or 9 surgeries by age 6 or so. Lots in the first 5 years then they said there was no more they could do. Lost my vision as my flair says by 8. It was getting more and more opaque and clouded by the day. And lost everything but light perception and probably lost that in the last 6 or 7 years, but I don’t know when that was. There isn’t much I could do with just light perception anyway.
By the age of 3 or 4 definitely by 5 or 6 I couldn’t see enough to read. So they taught me braille the letters had to be as large as a page I think everyone realized reading with large print wasn’t practical.
I drove one of those little kid electric golf carts little things like a go cart or something. Freaked everyone out. My parents tried everything to restore my vision. My eyes all collapsed now. I’ve had a few cornea transplants.
I appreciate it.
meganbernadette1 points1y ago
We opted to transplant one eye and leave one to give her the best shot of some kind of long term sight.. I hope we made the right decision. She has 20/200 right now in non transplanted eye, transplanted eye failed and has glaucoma shunt. We refuse to try another transplant until she’s old enough to make the decision for herself. Fought for Braille instruction and she is slowly learning it though she’s a visual learner and prefers the cctv right now. It’s not an easy journey but Peters Anomaly especially sucks. Hope she won’t remember all the surgeries and exams under anesthesia… the glaucoma sucks the most though can’t really opt out of any of those surgeries.
TechnicalPragmatist [OP]1 points1y ago
I lost my one eye do to failed surgery at 3 so it was one eye for the longest time. Was totally blind in the other since 3. That eye is smaller than the other if you look carefully. Interesting. Is the vision going? Hopefully. It won’t deteriorate. I have a valve or thing for glaucoma too.
How old is she?
And that’s good and interesting I did like visuals some but was always a pretty sensy kid and was fairly kinesthetic.
That makes sense I don’t remember most of the surgeries but do remember the last few a little on how the anesthesia and waking up but yeah, and waking early when I didn’t want to heh!
Wolfocorn201 points1y ago
i'm ok with being blind and have no wish to gain sight actually. Blind is not my identetty but it's a smal part of it and not in the pitty me way but more in the funny kwerky way. I still do things like playing games and going on wild adventures all over my country and soon even venturing out to uhm hear, feel smell and taste the world.
I've got wonderfull friends both vi and non vi, an amazing guide dog, cool projects to work on and quite a few hobbies as well. I'm perfectly happy the way i am and the way my life is turning out right now.
TechnicalPragmatist [OP]1 points1y ago
Sure I agree with you not in the pity me way but the my life is awesome look I am blind I do things differently I am quite differently abled. I don’t know if I like the term but the vibe of I do it different then you and I like it.
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