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Blind and Visually Impaired Community

Full History - 2022 - 05 - 23 - ID#uwb6pj
5
Trying to help a recently blind friend (self.Blind)
submitted by DNDuluth
A friend of mine has recently had a very nasty cancer fight. The cancer is very likely treatable but he has lost his vision.

The first thing to note is that he says that he is still doing testing to see exactly what caused the blindness. The cancer type was AGL leukemia so it was a different disease that caused the blindness after his immune system became compromised. The cancer is treatable but its not known what will happen with his vision.

What can I do for him in the short term and the long term? I think he has lost most of his sight because he says a screen magnifier won't help him.

So far I got him a radio and a few things that made sense from before he lost his sight. I also call him once a week.

I'm thinking once his immune system is back to working order I can introduce him to some hobbies I'm involved in that don't involve sight like dungeons and dragons (which i can vater to his abilities to as the DM), stand up comedy and maybe performing music.

I can't visit him in person since he is immunocomprimised and in the hospital.

What else can I do?
thewalruscandyman 2 points 1y ago
He is very lucky to have a friend like you, and you have already done a tremendous lot just being there for him. Even if you can't in person.
DrillInstructorJan 1 points 1y ago
I have mentored people in very similar situations and I can give you the three things that always worked best for us. Obviously some of this is only once he's out of medical care, but make it happen as soon as possible. Do not wait for "the time to be right" because the time is never right, it always feels too early, people never feel ready. You have to do this stuff in order to start feeling ready, which means you have to do it before you feel ready.

Get him out in the world. It's absolutely the most important thing to do. Do not let him vegetate in his house which is what people tend to do. Once he's as fixed as he's getting, if this is long term, he's not sick and he's not going to somehow get better, so he shouldn't be behaving like he's sick. People sit on the couch under a blanket. Don't.

Get him to stay in touch with his buddies. His buddies will probably hear about what's happened and not know what to do. They won't call him, for fear of it being somehow inappropriate. Obviously it's not inappropriate, but I find mostly people don't know that, and he will have to call them. Maintain friendships or you will end up being nobby no mates at a time when you really need mates.

Cane training. Nobody wants to do it. I don't want to do it. But if you don't have at least basic cane skills you cannot go anywhere or do anything, not even take an uber somewhere, and that's crushing. Being able to go places and do things is absolutely crucial to realising this doesn't have to suck as much as it seems like it does.

As a friend you may have to get quite pushy to make these things happen but believe me you'll be doing the guy a favour. I didn't have anyone to get pushy with me and I vegetated in total misery for way too long. Make it happen.
PrettyBlind1983 1 points 1y ago
Hello, I am very sorry to know what your friend has. I share my experience, I lost my sight three years ago and spent 15 days in the hospital. It is difficult for a person not to be able to get out of bed and not see what is going on around him so give him all the emotional support you can, he will appreciate it. If they allow him to have a cell phone, it would be good if you taught him to use the screen reader so that he can at least communicate with other people or listen to videos and audiobooks on YouTube. When you're battling two illnesses at once you need to keep yourself busy so you don't get depressed. when he can leave the hospital, he will have to learn to use the cane and also to use a computer to surf the internet. There are accessible video games and accessible sports as I have read. The important thing is that he does not give up and that he fights to move on, there are many people out there who will surely want to support and love him.
TechnicalPragmatist 0 points 1y ago
I read a llot of books and I find self development to be really helpful. Stuff like that also he can do a lot of his previous hobbies if he just adapts them.

What did he like to do?
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