Did anybody else grow up with little to no support(self.Blind)
submitted by Wendy_corduroy20
I was born with my visual impairment however I got little to no support in school or in life with it. I didn’t learn braille until I was a freshman in high school. And that’s the same with orientation and mobility. I have always struggled with being able to learn in school. I got held back in the first grade because I didn’t know how to spell anything. I was constantly falling and scraping my knees. I remember the first time that I made it a week without tripping! I was so happy!! Also in elementary school I was put on a pass fail system. I was extremely behind and felt stupid most days. I felt so incredibly alone because I thought I was the only one that was dealing with the stuff I was dealing with. It’s really hard not to feel resentment towards my parents for not fighting harder for me. I felt less important than my other disabled brother. He had all the occupational therapists physical therapists and specialists. I had nothing except numerous cornea transplants and struggling. I guess I wasn’t disabled enough? Sorry for this rant!
retrolental_morose9 points1y ago
My parents just ignored me - their other, sighted children were the ones they wanted. :) you're not alone.
Wendy_corduroy20 [OP]4 points1y ago
It’s so hard to feel like you’re inferior even in your own family! In my case my disabled brother got most of the attention because his disability was more involved than mine. All of their devotion and energy went into him. I’m sorry that your parents neglected you too!
retrolental_morose6 points1y ago
I've saught the good in it,now. I was angry for a time. I wondered if it was me, presumed so for years.
But it also made me who I am, in a sense. It gave me the confidence to find my own solutions,, or seek out those who could help me. I learned to manage much alone early on, and gained a comfort with my own skills and abilities at quite a young age. I also had a lot of time to do little but read, which broadened my views considerably.
I left the country when I was old enough. I've been back, and met those sighted brothers as adults. We've very little in common. they're not the sort of people I'd want to be.
pisces03871 points1y ago
no support from family here, either No matter what happens to me, it's always my fault, but my half siblings have all the love and support. I have been told I could never interact with my niece,/pick her up on my own ever, because in case I didn't notice, I'm blind when I got upset about this, mum and h.s got angry with me I'm sorry you had no support :(
retrolental_morose2 points1y ago
I'm happy now. I have a child, a good job and a home - a life of my own, effectively. I see it as their loss that my birth family don't get to be involved in any of that.
DarkDan38 points1y ago
Yes, growing up my parents weren't really in the picture. I lived a very sheltered life up until I was Nineteen. The education system fucked me over because they put me in with all the mentally handicapped kids cuz it's all the same thing right? So basically I learned nothing from grades 1 to 6. Didn't start using a cane or learning orientation and Mobility until middle school and even then my family didn't like that I used a cane. They would say things like put that ugly stick away. So yeah I definitely know where you're coming from
Central_Control6 points1y ago
So, why don't you resent them? Sounds like they were dicks about their own children's disability and didn't get you the help that you obviously needed. That sucks!
I also dealt with a situation where my needs were less important than a far family member because they just whined about it constantly. A less serious condition by far, of course.
Tell them they acted like a low-life scumbag toward their own children. If you don't, they'll die and you'll never get the chance to tell them. You're a human on the same level that they are, you should be able to communicate that no problem. Doesn't mean it has to be a screaming match, either. They know what they did, now all they want is to pretend they are good people when they know they aren't. They won't like it, but tell them how much their shitty actions hurt you. Don't expect an apology, for them to make it right, or whatever. Just tell them how it made you feel and how it still makes you feel when you think about it.
Don't keep it bottled up, that'll end up hurting you and you don't need any more hurt.
Wendy_corduroy20 [OP]1 points1y ago
They seem very remorseful. My mom in particular. My brothers condition was a lot more involved than mine and my parents were going through a divorce. Also 2008 happened the market crash and we were forced to move out in the middle of nowhere. It’s hard to be extremely mad at them when you look at all of the negative circumstances that were going on. Also my dad was dealing with his own stuff he was an alcoholic and struggling with that. Maybe I am being too forgiving I don’t know.
Central_Control1 points1y ago
You are being too forgiving, but I understand because they are family. There's always excuses when you're an adult. Jobs, cars, housing, food, addictions, etc... There's no excuse for neglecting a blind child for a dozen years.
Sorry. There just isn't. Part of being a father or mother is putting your child before you, especially when that child has serious medical conditions. I, personally, have given up everything that I had for my family. Several times. I would do it again. Instantly.
No, a market crash, a divorce, alcoholism, and disabled siblings are not good excuses to not get you the medical attention that you needed. Really.
I don't like having to say any of this. It's just awful. I'm sorry. I'm of the opinion that it's better to live in reality than to forever live in a pretend world that you make up as you go along. That's just me.
TheRedColorQueen5 points1y ago
I’m an only child and my parents always treated me like I was “normal” I felt like my disability was being ignored by them and I felt like they were ashamed of me because of it
Wendy_corduroy20 [OP]2 points1y ago
Yes! It’s important to be treated normally however all of your needs need to be met first. My dad in particular would make me feel like he was disappointed that he didn’t get a fully sighted daughter. I think they pretended that I was all fine because my constant cornea transplants made my vision functional enough that I could ride bikes and run around without tripping or colliding with stuff. Usually.
TheRedColorQueen1 points1y ago
Im sorry that happens to you, I had a cornea transplant as well, it helped me see better but it formed a membrane in my eye so I have to get it out ASAP. As a kid they pretended I didn’t have a disability when I was around other kids at home my parents would say “you can’t see that” if I standing far from the tv… like NO I CAN’T that’s what I mean by “treated normally” sorry for the confusion
princesspooball3 points1y ago
I was considered legally blind until I was 14 and I honestly got 0 support. I wasn't blind and I could see just enough to get by so no one knew what to do with me. I sat at the front of the class but I still couldn't see the blackboard and I was extremly any and never told anyone that I couldn't read it. It took me forever to do anything because I couldn't see, I'd sit there squinting and trying to squeeze out the letters as best I could. It really screwed up my education.
My dad made me feel bad about it. He'd ask me to identify the colors of a bird in our pear tree and it looked black to me because it was silhouetted or in shadow. I told him it was black and his reaction was to throw up his hands and just say "Omg! You can't see that?!? Are you kidding me?". I was 10 and I felt so ashamed. I thought maybe I was just stupid so I never told anyone else about my eyesight. Its so ridiculous that I thought that my vision impairment meant I was stupid. I wished I had known people like !e when imwas a kid, it would have helped tremendously.
gay_catgirl3 points1y ago
My family completely ignored and disregarded my vision impairment. The most they ever did was get me glasses in childhood but glasses didn't help me at all so I'm guessing my family just immediately gave up on assisting or accomodating me.
Wendy_corduroy20 [OP]2 points1y ago
Yes! I had glasses too. They did absolutely nothing! I’m sorry your parents did the bare minimum as well!
gay_catgirl1 points1y ago
Eh, it kinda sucks and at first when I realized, I was really really pissed but it's okay now cause at least now that I'm an adult, I was able to get myself a white cane and I'm finally learning to accommodate and speak up for myself and my needs.
SiriuslyGranger3 points1y ago
In many ways no, but the support I had had strings attached definitely did for a while until I turned 15 or 16. I didn’t want to be his perfect image so oh welp.
Wendy_corduroy20 [OP]1 points1y ago
That’s stupid! I’m sorry there were strings attached!
SiriuslyGranger1 points1y ago
Yeah, I guess that’s what happens when you are asian.
pisces03871 points1y ago
having read all the comments here, wondering would anyone be interested in a whtsapp or telegram group, kinda like a support thing? Be the support we never had sort of? If it's a stupid idea, no worries, it's just a thought
boobarmor1 points1y ago
Slightly different story. I lost most of my vision right when Covid hit two years ago. I was 32 at the time. It was completely unexpected—I bent over to pick something up off the floor, and when I stood up I was almost completely blind in both eyes. I actually went completely blind while I was waiting to get to the right specialist. Because of Covid, any resources I would have had were shut down, and all of my friends and family live on the other side of the country because I moved to where I live now for grad school. Seven surgeries (and another on the horizon) a crazy number of injections later (every three weeks), my vision has improved enough that I’m legally blind rather than completely blind, and I still haven’t gotten any therapy or training and still live alone. It’s been…rough. I’m getting through it though.
Bsmith07991 points1y ago
Before I was put in foster care at 15, I was homeschooled due to my parents pulling me out of school the very first time I ever tried to report them for their abuse and neglect. They didn't ever get me an eye exam.
Then when I was put in foster care it was assumed that if I had an eye issue it would be known already- I was told I was attention seeking and lying when I said I couldn't see the board even from the front row, when I kept bumping into other students in the hall because I couldn't see well, etc.
It took until I was 18 and able to make an appointment MYSELF to know I was legally blind and that glasses won't help me due to the specific reasons causing it.
So yeah. I relate. I STILL haven't learned braille, but I do know cane travel and I use it in lower light environments.
myblindcoach0 points1y ago
Sorry to hear what has happened to you. Unfortunately, there are a lot of people who grow up with little to no support. A lot of those reasons are because families are unsure where to start, how to help, are uncomfortable with the change and feel the loss of the perfect child. This is one of the many reasons we have reached out and started helping people in the community. No one should every feel alone or be placed onto a waiting list for services. We have some great resources available for anyone who is feeling unsupported www.myblindcoach.com
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