Blind and Visually Impaired Community
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Nurse with stargardt disease (self.Blind)
submitted by Wonderful-Finding-88
Hey everyone! Just posting here to see if anyone else is in the same boat as me. A couple months ago I found out that I have some type of inherited juvenile macular dystrophy (believed to be stargardt disease). I am 24 years old. My current vision is about 20/60 in both eyes. I am about a year into my nursing career and was just curious if there are any other RNs or other healthcare workers out there that are visually impaired? I currently work in the ICU as I am able to read medication bottles, print without magnification, etc. I have begun planning for my future and the likelihood that my vision will eventually progress to legal blindness. I will be starting an online masters program in August to become a Psychiatric/Mental Health Nurse Practitioner. I have read about many blind/visually impaired psychiatrists which motivated me to take the step of actually applying to school. I am very excited but also nervous and having some self-doubt. Would love to hear from yo guys!
Sal0170 1 points 1y ago
I’m a legally blind licensed nursing assistant wanting to go into nursing
r_1235 1 points 1y ago
I am a 22M with StarGardts. Recently graduated, will be joining a corporate in IT Sector soon as an employee.
I have absolutely no experience in healthcare sector, accept the CPR workshop I attended once. That was fun I suppose.
For career in psychiatry, perhaps check out that blind youtuber, Cailer with a C, not sure if I am spelling it correctly.
Unlike many other people with stargardts, my vision was already low since my birth. Doctors say it's gonna remain as it is for my lifetime. That's a bit of releaf I suppose. Although I can't see much, totally blind in dark, and even in sunlight, can see only big and close objects. In Daylight, I use cane as only an ID cane, as I can see enough to navigate independently. In nights or in dark areas, I use cane. Further, I use NVDA, sometimes Magnifire, and every screen of mine is in dark mode or high contrast.
You must get a vision rehab specialist or anything closer to that for dealing with your changing sight. Learn to use screen reading softwares, magnifires, cane, etc. The specialist will also guide you through usual life skills, cooking etc I think. Much of the blind life is just finding out other pathways to deal with our challenges.
I have absolutely no experience in healthcare sector, accept the CPR workshop I attended once. That was fun I suppose.
For career in psychiatry, perhaps check out that blind youtuber, Cailer with a C, not sure if I am spelling it correctly.
Unlike many other people with stargardts, my vision was already low since my birth. Doctors say it's gonna remain as it is for my lifetime. That's a bit of releaf I suppose. Although I can't see much, totally blind in dark, and even in sunlight, can see only big and close objects. In Daylight, I use cane as only an ID cane, as I can see enough to navigate independently. In nights or in dark areas, I use cane. Further, I use NVDA, sometimes Magnifire, and every screen of mine is in dark mode or high contrast.
You must get a vision rehab specialist or anything closer to that for dealing with your changing sight. Learn to use screen reading softwares, magnifires, cane, etc. The specialist will also guide you through usual life skills, cooking etc I think. Much of the blind life is just finding out other pathways to deal with our challenges.
Wonderful-Finding-88 [OP] 1 points 1y ago
Thanks for all the suggestions! I’ve also never had perfect vision, started wearing glasses in 2nd grade so at least there’s that lol. A bit nervous about the progression/how bad my vision will get but trying to take everything as it comes.
KillerLag 1 points 1y ago
Definitely see a low vision specialist about what tools you can use. Stargardt's affects your central vision, but magnification tools or magnification software can be very helpful.
For some clients, tinted sunglasses also helps them. Stargardt's often causes glare issues / light sensitivity.
For some clients, tinted sunglasses also helps them. Stargardt's often causes glare issues / light sensitivity.
Wonderful-Finding-88 [OP] 1 points 1y ago
I can definitely relate to the glare issues, just picked up a pair of polarized sunglasses the other day and they help so much with driving!
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