razzretina 5 points 11m ago
Definitely reach out to someone else at the Department of Blind Services because it sounds like there's been an error or something. Make use of his Medicaid to enroll him in therapy if he's up for it. It's hard to find anyone specializing in disability grief but just having a pro to talk to at all helps. Look into other services like Vocational Rehabilitation and blindness training programs as well, I know DVR does home skills training as well as work training.
Give him time and support to deal with the new info that he isn't going to get his sight back. That can be a heavier blow than people realize, especially when you were hoping there was a way out of this. It's like going blind all over again. Things aren't as hopeless as he feels right now and hopefully you guys can get better help than what you got before. Definitely broaden your scope of where to get help and services, sometimes you can find them in unusual places.
vbtodenver 4 points 11m ago
My ex-husband went blind unexpectedly while we were married so I feel your pain and know what you are going through.
My advice…. Look for a therapist outside of the department of blind services. Look to see what Medicaid offers. There are plenty of therapists that have experience working with disabled adults.
I agree in your assessment of what he’s going through.
An anecdote for you. I’m still friendly with my ex. We were divorced about 5 years after he went blind. We didn’t split up because he went blind but it definitely exacerbated existing issues.
He lives in another state so I don’t see him often. About 6 months ago I had the opportunity to spend the weekend with him. I was genuinely shocked at how different he is (4 years later) in his thoughts and behaviors. I realized that he’s just in a different stage in accepting his blindness.
Looking back I never thought he’d get there. But he did. He has a great job and is very successful.
My point in sharing all this is that I encourage you to keep fighting for him and what he needs. You will find a therapist.
He’s incredibly lucky to have you fighting with him and for him. Good luck!
SiriuslyGranger 3 points 11m ago
Yeah, you have to be actively looking for work or voc rehab isn’t interested in you, and you must do it their way. I had to close my case with them myself because I couldn’t handle the load they were asking for and just do it myself now. You can not work but you have to be older and like above your mid fifties or 60s? But otherwise if you don’t work, they don’t want a case opened. They’re interested in getting people in to the work force, as quickly as possible. If they found out I had another major change they’ll also not be happy with me. I was over loaded with work and worry and didn’t check my e-mails and was given the same type of thing. I said well, you’re not doing anything for me anyway, I asked them for things and they basically said well too bad you have help from school we’re not interested to give you any. I only sort of did.
Voc rehab is a very limited type of thing If you just want to subsist at home it’s probably not the right program. It’s like a ticket to work sort of thing.
carolineecouture 3 points 11m ago
Can you check if non-profit groups exist for the blind in your state? Yeah that email from the case worker is dishearting. It may be you have to go over their head to their supervisor to try and get his case re-opened.
Good luck!
[deleted] 1 points 7m ago
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