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Blind and Visually Impaired Community

Full History - 2022 - 07 - 20 - ID#w3vmqy
13
Lost, in need of help (self.Blind)
submitted by blindspousehelp



Hello everyone, I’m a long time lurker (first time posting) and I’d like to start off by saying how helpful I have found this subreddit! A couple years ago my husband went from fully sighted to zero vision. His vision is black. First it was just blurry and he thought he was just starting to need glasses. We live in the US and have no health insurance and we didn’t know what to do. Then his vision went black. Since then we discovered the department of blind services, were able to get medical attention, and he has had eye surgery but it does not look like his vision will be returning. This subreddit has been so incredibly useful to us for adjusting, finding helpful tools and technology, etc and I thank you for that.

With that said, I am in desperate need of advice. My husband is extremely depressed. I believe he is going through the stages of grief over his loss of vision (understandable) and was in denial for a long time hoping it would come back. Now I think he is stuck on depression and anger stages. The level of depression he it’s experiencing is worrying.

With his permission, I contacted the department of blind services to ask if they had any therapy referrals for helping him deal with processing his loss of sight. This isn’t a simply get over it thing, he very clearly needs professional help. We left numerous voicemails to his case manager over the course of weeks and got no response. I finally sent an email and the case manager emailed back that she was busy with open cases and his was closed due to failure to cooperate. I am extremely confused. He completed 5 classes with the department of blind services. I don’t remember all of the classes besides a life skills one (such as cooking) and group therapy (which he hates because most of the people in the therapy group had sight and it probably did him more harm than good but he completed it). The only class he did not complete was a typing class they put him in after these 5 classes. At the time he started this typing class, he was in and out of the hospital for other chronic health conditions; he developed gastroparesis and was/is in crippling (I do not use this word lightly) half the time; and we were on the verge of homelessness (it took a year for his disability application to be approved). Additionally, the typing class (like all his completed classes) was done virtually which he found very challenging - at the time he begged for a phone class to be able to better use his phone and they said they only did the phone class after the typing class. He ended up dropping the typing class and focusing on trying to get his gastroparesis under control (which is still a struggle to this day).

The department of blind services is mad he didn’t complete the typing course because he was supposed to be on a “go back to work” track. I think it’s unrealistic to expect someone who completely lost their vision, is in agonizing physical pain and in and out of the hospital, and was on the verge of homelessness to just pick up typing and start a completely new line of work (he was very athletic and worked with his hands prior) ASAP. I do not understand how because he didn’t complete a typing class, at one of the worst times in both of our lives, the department of blind services will no longer help him at all ever. Do you feel it would benefit us to try to reach out to someone else at the department of blind services? Does anyone have recommendations on therapy services for adjusting to being blind? He is on disability and Medicaid. If anyone has any advice at all on where to go from here it would be greatly appreciated.
razzretina 5 points 11m ago
Definitely reach out to someone else at the Department of Blind Services because it sounds like there's been an error or something. Make use of his Medicaid to enroll him in therapy if he's up for it. It's hard to find anyone specializing in disability grief but just having a pro to talk to at all helps. Look into other services like Vocational Rehabilitation and blindness training programs as well, I know DVR does home skills training as well as work training.

Give him time and support to deal with the new info that he isn't going to get his sight back. That can be a heavier blow than people realize, especially when you were hoping there was a way out of this. It's like going blind all over again. Things aren't as hopeless as he feels right now and hopefully you guys can get better help than what you got before. Definitely broaden your scope of where to get help and services, sometimes you can find them in unusual places.
vbtodenver 4 points 11m ago
My ex-husband went blind unexpectedly while we were married so I feel your pain and know what you are going through.
My advice…. Look for a therapist outside of the department of blind services. Look to see what Medicaid offers. There are plenty of therapists that have experience working with disabled adults.
I agree in your assessment of what he’s going through.
An anecdote for you. I’m still friendly with my ex. We were divorced about 5 years after he went blind. We didn’t split up because he went blind but it definitely exacerbated existing issues.
He lives in another state so I don’t see him often. About 6 months ago I had the opportunity to spend the weekend with him. I was genuinely shocked at how different he is (4 years later) in his thoughts and behaviors. I realized that he’s just in a different stage in accepting his blindness.
Looking back I never thought he’d get there. But he did. He has a great job and is very successful.
My point in sharing all this is that I encourage you to keep fighting for him and what he needs. You will find a therapist.
He’s incredibly lucky to have you fighting with him and for him. Good luck!
SiriuslyGranger 3 points 11m ago
Yeah, you have to be actively looking for work or voc rehab isn’t interested in you, and you must do it their way. I had to close my case with them myself because I couldn’t handle the load they were asking for and just do it myself now. You can not work but you have to be older and like above your mid fifties or 60s? But otherwise if you don’t work, they don’t want a case opened. They’re interested in getting people in to the work force, as quickly as possible. If they found out I had another major change they’ll also not be happy with me. I was over loaded with work and worry and didn’t check my e-mails and was given the same type of thing. I said well, you’re not doing anything for me anyway, I asked them for things and they basically said well too bad you have help from school we’re not interested to give you any. I only sort of did.

Voc rehab is a very limited type of thing If you just want to subsist at home it’s probably not the right program. It’s like a ticket to work sort of thing.
carolineecouture 3 points 11m ago
Can you check if non-profit groups exist for the blind in your state? Yeah that email from the case worker is dishearting. It may be you have to go over their head to their supervisor to try and get his case re-opened.

Good luck!
[deleted] 1 points 7m ago
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