Blind and Visually Impaired Community
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Spouse/partner of someone with significant RP vision loss. (self.Blind)
submitted by GaymerGeek_2
So I've been looking online for some articles/or free books/blogs of partners/spouses with someone who has RP/or similar situation where they are losing vision everyday. It's a challenge sometimes because my partner and I are not old (i am in my mid 30s and my partner is around 30) so like I'm just wondering if anyone knows of any resources that would be good for me as far as support for myself and how can I prepare myself for a lifetime with them. I saw that there is a discord for this community? I do use discord.
any advice would be helpful.
any advice would be helpful.
vbtodenver 4 points 11m ago
Have to echo previous poster. My ex-husband went blind while we were married and I could not find any support groups. Feel free to reach out to me as well.
bayjule 2 points 11m ago
Please feel free to reach out. My husband (31) has cone dystrophy and has progressively lost his vision for several years; he’s now legally blind. I’ve also struggled to find resources for spouses but have also had a hard time finding people to talk to who are our age and going through something similar. It’s been a really isolating experience and we’re still struggling so I appreciate your post.
EffectiveYak0 2 points 11m ago
I'm 34, about to be 35, and I went blind 3 years ago. I think my wife struggled with it as much as I did. For us, the cause was really sudden and shocking which I think added to the stress. We've learned to adapt over time, but some things are still struggles and I know she struggles with her feelings about it sometimes. I think it helps to just be honest about feelings. For me, I've opened up about my sadness losing vision, about how it's changed my life, and how I feel the need to be as independent as possible. Maybe starting with open and honest conversations will help you two.
It sounds like y'all are about our age. I'm usually on discord if you ever want to talk.
It sounds like y'all are about our age. I'm usually on discord if you ever want to talk.
sadfactory 2 points 11m ago
I am part of a small Facebook support group, you are welcome to join us if you are on Facebook:
https://www.facebook.com/groups/60882045691/
Despite the group name, it’s not just for spouses. (They have had discussions on changing the name to something more inclusive.) There are people with varying levels of blindness, and we have discussions on everything from daily struggles, to adapting to new vision loss, to celebrations, or sometimes just to vent or sympathize.
https://www.facebook.com/groups/60882045691/
Despite the group name, it’s not just for spouses. (They have had discussions on changing the name to something more inclusive.) There are people with varying levels of blindness, and we have discussions on everything from daily struggles, to adapting to new vision loss, to celebrations, or sometimes just to vent or sympathize.
GaymerGeek_2 [OP] 2 points 11m ago
hi thanks for your outreach, I requested to join. thanks again I really appreciate it.
poptartsinyourface 2 points 11m ago
I’m sorry I can’t point you to any resources, just wanted to say as the wife of a legally blind dude, if you ever have questions or need support, feel free to DM me. I think the fact that you are asking this question is an indication of how supportive you are of your partner, that right there already means a lot.
OldManOnFire 1 points 11m ago
$1
I salute you, Gaymer. You're one of the few with enough courage to do this. Hopefully something in my story will help.
I salute you, Gaymer. You're one of the few with enough courage to do this. Hopefully something in my story will help.
GaymerGeek_2 [OP] 1 points 11m ago
Thank you so much!! It's encouraging to know I am not the only one going through this. It is hard sometimes because of the grief and depression of course, but I know it's worth it. Also thanks to the two others who replied as well.
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