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Blind and Visually Impaired Community

Full History - 2022 - 07 - 25 - ID#w83xuf
37
5 year old niece just got her first cane (self.Blind)
submitted by Fun-Engina
Hi. Sighted aunt trying her best to be helpful here.
My niece was born with cataracts and has had many surgeries since. Like the title said, she got her first cane today after recovering from the most recent surgery and is walking around like a pro.

I've always kept it very light with my brother about her because I know my parents are always being dramatic with him, but I want to be more informed and more helpful. Especially when I go to visit during the holidays.

Sorry if this is the wrong place to ask, but does anyone have any advice on anything I should read or learn. Or even anything fun or cool or helpful I can get for my brother and niece?

We are all in the US but very far away from each other.
razzretina 24 points 11m ago
Aww first cane, that's exciting! Honestly just treat her like any other kid. She'll be getting a lot of the services she needs through school. It means a lot to these kiddos to just be treated like the kids they are.
KillerLag 11 points 11m ago
For some kids, decorating the cane (within reason) can help with buy-in and encourage usage. I've seen some people decorate it with stickers (if they have some usable vision) and rhinestones. There is a company that makes then, but to be honest, you can do the same thing with dollar store supplies and decent glue.

https://www.glamsticks.co.uk/product/rhinestone-encrusted-white-cane/

Encourage the family to have your niece get some O&M training from a specialist (your school may already provide it), and maybe even consider enrolling in a camp for those with vision loss. It can be useful for her to interact with other children to vision loss to find out what they like to do and for her to find out there are others like her.

If your brother didn't know, a fair bit of Disney+ has descriptive video. This can help with your niece following along with a video she may have trouble seeing (especially ones with lots of details), and help her keep up with her peers about what she has seen (it can be really frustrating for some kids when all their friends are talking about a recent movie, but she hasn't because she wasn't able to follow along).

https://help.disneyplus.com/csp?id=csp_article_content&sys_kb_id=087aaa78db0580100a2af56e0f9619aa
CampyUke98 4 points 11m ago
I'm guessing rhinestones are great (bc pretty) but also probably play off the light a bit for kiddos with lower vision? I would think something small that has texture that could stick to the cane might be a good sensory item to put on it, especially for a little kid, unless that would be too distracting?
KillerLag 5 points 11m ago
Depending on what kids like, anything could be distracting. One of my kid clients found bike streamers fascinating and could stare at it for a while. I've also seen a kid stare at a fidget spinner going for two straight minutes (until it finally stopped).
LAZNS_TheSadBlindAce 8 points 11m ago
You know what I really really loved as a child growing up blind


When board games were accessible


And yeah I know most people don't even play board games anymore but it's still super cool when you get a Monopoly board that's brailed so you can move the pieces on your own and not have to have someone move them for you or when your chest set has squares that are raised so you know where the lines are


I think you can get accessible games like that on Amazon and you can get brailed playing cards so you can play all the card games like Uno or go fish


I mean if she's only five she probably is young enough where you can still introduce her to board games and she might love them and it's the kind of thing you can do with somebody else or the kind of thing you could do with the whole family I really really love family game nights when I was little
LAZNS_TheSadBlindAce 6 points 11m ago
I don't see why DND wouldn't be accessible it's not a board game all you need is Dice and imagination right?


Also and I know you probably heard this already but audiobooks


5 years old is young enough where you can still get into reading so find some books you like or ask her what you've into and find the audio versions of them and just get started and it'll snowball from there trust me

I will never be able to stop thinking my dad for getting me into audiobooks when I was three.
Fun-Engina [OP] 5 points 11m ago
Oh my goodness. I have a giant bookcase full of board games. I can absolutely add some accessible games to my collection to take and leave when I visit.

Is 5 too early for dungeons and dragons? I could probably figure something out for that.
pokersnek 5 points 11m ago
Dolly Parton has a foundation that will mail Braille books to kids every month. They’re age appropriate and the kids get to keep them.
Tarnagona 3 points 11m ago
You can do a simplified D&D with a five year old. My brother-in-law did this with his children, and used it as a way to practice maths as well. That is, instead of rolling a d20, the kid would need to roll 2d6 and add the numbers. If they got the right answer, they succeeded at that check. The older child got more complicated math problems.

I think accessible d6s shouldn’t be too hard to find (I have a couple big ones that I can easily feel the divets of the pips. I believe there are one or two places online making other dice?
Fun-Engina [OP] 2 points 11m ago
Using it to work on math problems is such a good idea!
I'm certain I can find some accessible dice sets, and a good excuse to buy more click clack rocks!
Tarnagona 3 points 11m ago
No such thing as too many click-clack rocks! :D
The_Alchemyst 4 points 11m ago
I glam up my SO's cane! Think bejeweling
Tarnagona 2 points 11m ago
I customized my cane this time around to make it space-themed, and I love it. I didn’t really use a cane as a child, but I think many children would enjoy glamming up their canes, whether different colours, stickers, a bauble on the handle…
DrillInstructorJan 3 points 11m ago
First cane! Aww.

Just make her use it. My experience is not with people who were born with sight problems and they can often be very reluctant because they don't want to stick out, and I get that. I don't know if that's something you'll hit once she becomes more aware of how other people see it, but I suspect she will, because she'll get comments. Unless someone's really being persistently unpleasant, questions are not bad or wrong, that's just life, and she needs to be able to deal with it with a smile on her face. But there's no love for a shy cane with agoraphobia that lives in your bag while you take a guide from someone. It's very much a learned skill and you can get amazingly good at it. It's also a perishable skill so you have to stay in shape. Even not going out for a couple of days over xmas, say, I notice the skill fading.

Oh, yeah, and as regards staying in shape... she's young of course, but being in good physical shape is massively massively helpful. Holding a cane for anything other than a short journey is a physical workout for your arm. Also consider which hand she's going to use, or try to make her ambidextrous with it if that's possible. Most people end up doing it with their naturally dominant hand which is instinctive but then you end up with your dominant hand tied up any time you're walking anywhere.

I don't know what is taught by proper O and M people (paging u/KillerLag) but one thing I always make sure to do is guard myself with the cane when I'm getting a guide from anyone I don't trust completely, which is basically everyone other than my partner of twenty years. Many people don't do this and it is a mistake. Just have it in front of your legs, you don't need to sweep, just out in front a little. Saves a lot of bashing your shins. The other aspect to this is that you can't reasonably expect everyone to be a brilliant sighted guide first time out, and they'll feel terrible if they walk you into something, and I sort of make it my problem to save them that. Helps with getting along with people.

In my world, people who refuse to use canes properly soon become members of the Order of the Bruised Hip, this is inevitable and is part of the process. Better to get it sorted out when she's four feet tall and has less distance to fall.
ravenshadow2013 3 points 11m ago
It's always exciting watch8ng children learn and explore their surroundings, but remember she's a kid and surprise surprise kids LOVE toys think interactive think talk back, I bought on of my client's k7ds who has glaucoma on of the interactive robots from Amazon (like $40) and she love the goofy thing. You xan alway be practical but to be COOL go with the toys
SiriuslyGranger 3 points 11m ago
Get her some different types of cane tips to go with the cane, nice and pragmatic.
codeplaysleep 3 points 11m ago
I loved audio books as a kid. Also, my dad read to me for many years longer than most kids are read to by their parents (until I was probably around 12), because reading was so slow and difficult for me. I have tons of fond memories of him reading stories to me and I credit him for my love of reading. Otherwise, I might have just given up on it all together.
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